Yesterday, the WHO approved my February 2020 proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11.
See thread:
Updates on status of ICD-11 and changes to other classification and terminology systems
Post #443...
Google translated:
The Canadian Press
MONTREAL - A new test developed by Montreal researchers is expected to improve the diagnosis and treatment of patients with myalgic encephalomyelitis (ME), a condition better known as chronic fatigue syndrome.
L'EM is currently diagnosed primarily by...
Thought it could be helpful to have a thread on Jonathan's expert testimony for any further use and citation.
Edwards, Jonathan CW (2020), The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis/chronic fatigue syndrome: Expert testimony presented to...
The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation").
Comments can be submitted through a form on their website. Deadline is Friday, 4 December 2020.
Anna lausuntosi Krooninen väsymysoireyhtymä (ME/CFS) Hyvä käytäntö...
Post copied from
Attitudes of incoming US politicians to ME/CFS and post-Covid 19 illness
Details below.
Basically, they aim to recruit a lot of people with a positive diagnosis for SARS-COV2 and follow them for 18 months, with ME/CFS as the primary outcome. (I think that's quite a strong...
Long Covid: what teachers and pupils need to know
https://www.tes.com/news/long-covid-what-teachers-and-pupils-need-know
(Split thread:
Jo Daniels is quoted, defending CBT for ME/CFS and for Longcovid. Her quotes come towards the end of the article.)
From: Dr. Marc-Alexander Fluks
B.Sc. Thesis Kate Donnelly
Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/
https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf
Free full text:
https://www.rcpjournals.org/content/clinmedicine/early/2020/11/02/clinmed.2020-0204
Long-term sequelae following previous coronavirus epidemics
I'm not sure whether this tells us much that hasn't been discussed before, though I haven't read it closely.
FRONTIERS in BIOLOGY: Progress and challenges for a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) diagnostic
Nov 11, 2020 (Wed) | 4:00 PM -5:00 PM
via Zoom : Stanford, CA
Department: Biochemistry
Contact: Maria | - | marilen at stanford dot edu
Presenter(s):
Ron Davis Stanford...
Several related threads have been merged. Link to the research protocol for the literature review here.
Story in the Australian news:
SAHMRI researchers in hunt to find cure for Chronic Fatigue Syndrome
WORLD-first research in Adelaide that involves taking the blood samples of donors every...
Not a new study.
Reduced parasympathetic reactivation during recovery from exercise in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS)
2015
https://www.physiotherapyjournal.com/article/S0031-9406(15)02014-3/abstract
@PhysiosforME you might be interested in these authors...
The antinuclear antibody dense fine speckled pattern and possible clinical associations: An indication of a proinflammatory microenvironment (2020) Lundgren et al
Abstract
Background: Indirect immunofluorescence (IIF) is the most prevalent screening antinuclear antibody test for systemic...
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