me/cfs

  1. Andy

    Fibromyalgia and Chronic Fatigue Syndrome in the Age of COVID-19, 2020, Mohabbat et al

    Open access, https://mcpiqojournal.org/article/S2542-4548(20)30153-3/fulltext
  2. Sly Saint

    Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population: Kitami, Fukuda et al 2020

    https://www.nature.com/articles/s41598-020-77105-y
  3. Dx Revision Watch

    The WHO has approved my proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11

    Yesterday, the WHO approved my February 2020 proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11. See thread: Updates on status of ICD-11 and changes to other classification and terminology systems Post #443...
  4. Andy

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    Open access, https://journals.sagepub.com/doi/10.1177/1049732320969395
  5. S

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020)Moreau et al

    Google translated: The Canadian Press MONTREAL - A new test developed by Montreal researchers is expected to improve the diagnosis and treatment of patients with myalgic encephalomyelitis (ME), a condition better known as chronic fatigue syndrome. L'EM is currently diagnosed primarily by...
  6. MSEsperanza

    The difficulties of conducting intervention trials for the treatment of [ME/CFS]: Expert testimony to NICE guidelines committee by Jonathan Edwards

    Thought it could be helpful to have a thread on Jonathan's expert testimony for any further use and citation. Edwards, Jonathan CW (2020), The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis/chronic fatigue syndrome: Expert testimony presented to...
  7. mango

    Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

    The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation"). Comments can be submitted through a form on their website. Deadline is Friday, 4 December 2020. Anna lausuntosi Krooninen väsymysoireyhtymä (ME/CFS) Hyvä käytäntö...
  8. Simon M

    USA: INSPIRE Innovative Support for Patients with Covid-19 Registry (ME/CFS outcome measure)

    Post copied from Attitudes of incoming US politicians to ME/CFS and post-Covid 19 illness Details below. Basically, they aim to recruit a lot of people with a positive diagnosis for SARS-COV2 and follow them for 18 months, with ME/CFS as the primary outcome. (I think that's quite a strong...
  9. John Mac

    Jo Daniels (on CBT, ME/CFS and Long Covid)

    Long Covid: what teachers and pupils need to know https://www.tes.com/news/long-covid-what-teachers-and-pupils-need-know (Split thread: Jo Daniels is quoted, defending CBT for ME/CFS and for Longcovid. Her quotes come towards the end of the article.)
  10. T

    Symptoms, function and quality of life in myalgic encephalomyelitis/CFS: an Australian based, cross-sectional study, 2019, Donnelly

    From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/ https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf
  11. Andy

    Call for submissions for special issue, "Biomarkers in Chronic Fatigue Syndrome (ME/CFS)", Biomolecules journal, deadline 30th June 2021

    https://www.mdpi.com/journal/biomolecules/special_issues/Biomarkers_in_CFS https://twitter.com/BhupeshPrusty/status/1324791213745184769
  12. Andy

    USA: NIH annual funding for ME/CFS research (discussion)

    NIH Funding for ME in 2020: Falling Flat http://occupyme.net/2020/11/06/nih-funding-for-me-in-2020-falling-flat/
  13. Andy

    Fibromyalgia screening in patients with unexplained chronic fatigue, 2020, Aakre

    Paywall, https://journals.lww.com/menopausejournal/Abstract/9000/Fibromyalgia_screening_in_patients_with.97059.aspx Sci hub, no access.
  14. Dolphin

    Long term sequelae following previous coronavirus epidemics O’Sullivan November 2020

    Free full text: https://www.rcpjournals.org/content/clinmedicine/early/2020/11/02/clinmed.2020-0204 Long-term sequelae following previous coronavirus epidemics I'm not sure whether this tells us much that hasn't been discussed before, though I haven't read it closely.
  15. Sly Saint

    Lived experiences in daily life with myalgic encephalomyelitis: 2020, Sandhu et al

    https://journals.sagepub.com/doi/full/10.1177/0308022620966254
  16. John Mac

    Changes in DNA methylation profiles of myalgic encephalomyelitis/chronic fatigue syndrome patients reflect systemic dysfunctions, Helliwell et al 2020

    https://clinicalepigeneticsjournal.biomedcentral.com/articles/10.1186/s13148-020-00960-z
  17. Sly Saint

    FRONTIERS in BIOLOGY: Progress and challenges for a ME/CFS diagnostic - Ron Davis

    FRONTIERS in BIOLOGY: Progress and challenges for a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) diagnostic Nov 11, 2020 (Wed) | 4:00 PM -5:00 PM via Zoom : Stanford, CA Department: Biochemistry Contact: Maria | - | marilen at stanford dot edu Presenter(s): Ron Davis Stanford...
  18. Sasha

    Circulating leptin levels in patients with [ME], [CFS] or fibromyalgia a systematic review protocol, 2020, Musker et al

    Several related threads have been merged. Link to the research protocol for the literature review here. Story in the Australian news: SAHMRI researchers in hunt to find cure for Chronic Fatigue Syndrome WORLD-first research in Adelaide that involves taking the blood samples of donors every...
  19. Sly Saint

    Reduced parasympathetic reactivation during recovery from exercise in(ME)/(CFS), 2015, J. Van Oosterwijck et al (also 2021)

    Not a new study. Reduced parasympathetic reactivation during recovery from exercise in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) 2015 https://www.physiotherapyjournal.com/article/S0031-9406(15)02014-3/abstract @PhysiosforME you might be interested in these authors...
  20. M

    The antinuclear antibody dense fine speckled pattern & possible clinical associations: indicates a proinflammatory environment, 2020, Lundgren et al

    The antinuclear antibody dense fine speckled pattern and possible clinical associations: An indication of a proinflammatory microenvironment (2020) Lundgren et al Abstract Background: Indirect immunofluorescence (IIF) is the most prevalent screening antinuclear antibody test for systemic...
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