me/cfs

Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewsk, P.; Pheby, D...

Free full text: https://link.springer.com/article/10.1007/s00787-020-01646-w

Not a recommendation http://thebiomedicapk.com/articles/819.pdf ORIGINAL ARTICLE Mental Health and Chronic Fatigue Syndrome: Is Mental Health the Culprit Behind Your Fatigue?

Someone posted a link on twitter about a planned documentary called Relevium. https://glematiroad.com/relevium-documentary I don't know anything about this other than what I've read just now on this website, but I'm hopeful. If anyone on the forum has more info about this please share! At...

Open access, https://acamh.onlinelibrary.wiley.com/doi/10.1111/camh.12421

https://www.sciencedirect.com/science/article/abs/pii/S0277953620305888 Some of these have been involved with annoying papers in the past Social Science & Medicine Available online 16 September 2020, 113369 In Press, Journal Pre-proof

Barbara Stussman1*, Ashley Williams2, Joseph Snow3, Angelique Gavin4, Remle Scott1, Avindra Nath4 and Brian Walitt5 https://www.frontiersin.org/articles/10.3389/fneur.2020.01025/full

Evelien and I were interested in what clinical trials are currently planned or ongoing for ME/CFS. It can take many years to conduct a clinical trial and report the results, so we wanted to know what we can expect to come out in the next years. A search of databases that register clinical...

Full title: Orthostatic stress testing in myalgic encephalomyelitis/chronic fatigue syndrome patients with or without concomitant fibromyalgia: effects on pressure pain thresholds and temporal summation Paywall, https://www.clinexprheumatol.org/abstract.asp?a=15665 Unable to access via Sci hub...

New blog Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath Understanding long covid: a shortcut to solving ME/CFS? September 17, 2020 Simon McGrath Comments 0 Comment Large numbers of people, around one in 10, don’t make a normal recovery from coronavirus but continue...

omf sent this out: vvv NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS A resource for clinicians and patients. The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS. This handout is being made...

The Patient is In - A Podcast by StuffThatWorks Stories showcasing what's possible when people are empowered to advocate for their own health, or the health of their loved ones. Hosted by Dina Kraft & produced by Skyler Inman September 7 2020 - Episode 11 For 15 years Joe Landson lived with a...

"Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits. "You’re constantly...

My bolding https://www.preprints.org/manuscript/202009.0264/v1 So researchers studying Fibromyalgia 'accidently' find out that physiotherapy doesn't work for people with ME/CFS. @PhysiosforME

Paywall, http://dx.doi.org/10.1515/sjpain-2020-0031 Sci hub, unable to access paper at time of posting.

https://pubmed.ncbi.nlm.nih.gov/27747291/ http://www.jnsci.org/files/article/2016/e221.pdf Thread. https://forums.phoenixrising.me/threads/elevated-energy-production-in-chronic-fatigue-syndrome-patients.47443/

https://the-slow-lane.com/

RETRACTED - link to post Full Title: Using Plasma Autoantibodies of Central Nervous System Proteins to Distinguish Veterans with Gulf War Illness from Healthy and Symptomatic Controls Gulf War Illness the main focus of the study but they had a control group of 50 people with ME/CFS My bolding...

Factors Affecting the Characterization of Post-Exertional Malaise Derived from Patient Input https://digitalscholarship.unlv.edu/jhdrp/vol13/iss2/5/ (This would normally fit in research but is neither psychosocial nor biomedical, perhaps a category for research on clinical care is needed?)

https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/Resources_for_Clinicians_and_Healthcare_Professionals/CBT_for_CFS_Therapist_Manual.pdf link found here...