me/cfs

  1. John Mac

    Validation of the Severity of ME/CFS by Other Measures than History: Activity Bracelet, CPET, SF-36. van Campen et al, 2020

    Full title: Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36 https://www.mdpi.com/2227-9032/8/3/273
    • John Mac
    • Thread
    • 2020 actigraphy activity levels cpet exercise physiology me/cfs monitoring paper severity sf-36 van campen
    • Replies: 31
    • Forum: ME/CFS research
  2. S

    Brain inflammation

    I seem to have weeks going into months of brain inflammation which is horrendous. My brain feels inflamed which at night particularly seems to go throughout my body, some of the day as well. The feeling is deeply uncomfortable and quite excruciatingly painful with some throbbing, spreads across...
  3. Dolphin

    COVID-19 is viewed as severe as Tumor and HIV; Perceptions towards Covid- 19 (includes CFS comparison), 2020, Menebo - preprint

    https://www.researchgate.net/publication/343405995_COVID-19_is_viewed_as_severe_as_Tumor_and_HIV_Perceptions_towards_Covid-19_Preprint
  4. Grigor

    Post-covid: ME/CFS revisited

    Dr. Jim Faas insurance physician and former chairman of the Dutch Association for Insurance Medicine, has written a blog about #LongCovid, CBT and ME. Mark Vink and I secretly helped tweaking it a bit. Really very brave of him that he dares to put this subject on this prominent medical website...
  5. Andy

    Effects of the prolong life with nine turn method (Yan Nian Jiu Zhuan) Qigong on patients with chronic fatigue syndrome, 2018, Xie et al

    Full title: Effects of the prolong life with nine turn method (Yan Nian Jiu Zhuan) Qigong on patients with chronic fatigue syndrome: study protocol for a randomized controlled trial Open access PDF available from http://apm.amegroups.com/article/view/48615
  6. Sly Saint

    Infographic: What is ME/CFS?

    In The Scientist. (not very long, with graphics) I thought this was quite good (particularly for new possible post-covid pwME) https://www.the-scientist.com/infographics/infographic-what-is-me-cfs-67806
  7. M

    Patient-oriented research awards funded in brain imaging and physiology for ME in British Columbia, August 2020

  8. John Mac

    Now Available: The 2020 ME Association ME/CFS/PVFS Clinical and Research Guide!

    The ME Association has just published it's latest guide. https://meassociation.org.uk/2020/08/now-available-the-2020-me-association-me-cfs-pvfs-clinical-and-research-guide/
  9. Andy

    Universidad Católica de Valencia: Predoctoral Fellowship - Molecular Markers of Myalgic Encephalomyelitis, 2020

    https://euraxess.ec.europa.eu/jobs/545894
  10. MSEsperanza

    Fatigue measurement scales

    Elbers, R.G., Rietberg, M.B., van Wegen, E.E.H. et al. (2012), Self-report fatigue questionnaires in multiple sclerosis, Parkinson’s disease and stroke: a systematic review of measurement properties, Qual Life Res (2012) 21: 925. https://doi.org/10.1007/s11136-011-0009-2 Abstract: Chalder...
  11. John Mac

    Exercise alters brain activation in Gulf War Illness and ME/CFS. Washington et al. 2020

    Full title: Exercise alters brain activation in Gulf War Illness and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://academic.oup.com/braincomms/article/2/2/fcaa070/5885074 The Science Times covers the story here...
    • John Mac
    • Thread
    • 2020 cognitive fatigue exercise fmri gulf war illness me/cfs neuroimaging paper washington
    • Replies: 9
    • Forum: ME/CFS research
  12. Esther12

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Due in the Journal of the Royal Society of Medicine https://kclpure.kcl.ac.uk/portal/files/132955332/pdf_proof_re_submit.pdf https://kclpure.kcl.ac.uk/portal/en/publications/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs(67b43c92-f30b-4e21-a7b6-1b94e2ead525).html
  13. Andy

    Environmental, Neuro-immune, and Neuro-oxidative Stress Interactions in Chronic Fatigue Syndrome, 2020, Bjørklund et al

    Paywall, https://link.springer.com/article/10.1007/s12035-020-01939-w Sci hub, https://sci-hub.tw/10.1007/s12035-020-01939-w
    • Andy
    • Thread
    • 2020 bjorklund immunology me/cfs nitric oxide paper pkr review
    • Replies: 1
    • Forum: ME/CFS research
  14. Grigor

    Protocol ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.

    Very troubling study by prof Knoop et al. "ONDERZOEKSVRAAG To investigate whether delivering timely Cognitive Behavioural Therapy [CBT], an evidence-based treatment for chronic fatigue, is effective in preventing the development of post-COVID-19 chronic fatigue. URGENTIE A substantial...
  15. Sly Saint

    Kynurenine Trial in ME/CFS - Bergquist

    STUDY AIM The purpose of the study is to evaluate whether kynurenine is directly connected to ME/CFS patient symptom severity. LEAD INVESTIGATORS Jonas Bergquist, MD, PhD, Prof, Director ScD Kumari Ubhayasekhera, PhD Sandy Abujrais. PhD Student further details here...
  16. J

    TSPO-PET/MRI Reveals Increased Neuroinflammation in Basal Ganglia in Chronic Fatigue Syndrome Patients

    Couldn’t find the abstract.
    • Jaybee00
    • Thread
    • 2020 basal ganglia brain imaging me/cfs mri neuroinflammation stanford
    • Replies: 9
    • Forum: ME/CFS research
  17. John Mac

    Accurate and Objective Determination of ME/CFS Disease Severity with a Wearable Sensor. Palombo et al. 2020

    Full Title: Accurate and Objective Determination of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Disease Severity with a Wearable Sensor https://www.researchsquare.com/article/rs-48360/v1
  18. Andy

    Autonomic Phenotypes in Chronic Fatigue Syndrome (CFS) are Associated with Illness Severity: A Cluster Analysis, 2020, Zalewski, Morten, Newton et al

    Open access, https://www.mdpi.com/2077-0383/9/8/2531
    • Andy
    • Thread
    • 2020 arterial stiffness autonomic dysfunction karl morten me/cfs newton paper pawel zalewski severity
    • Replies: 3
    • Forum: ME/CFS research
  19. Sly Saint

    Preprint: Dental Care of the Homebound Patient with Myalgic Encephalomyelitis/cfs - Spivack July 2020

    not peer reviewed https://www.preprints.org/manuscript/202007.0754/v1 (full free pdf download available at link)
  20. John Mac

    Mapping of pathological change in chronic fatigue syndrome using the ratio of T1- and T2-weighted MRI scans. Thapaliya et al. 2020

    https://www.sciencedirect.com/science/article/pii/S2213158220302035
    • John Mac
    • Thread
    • 2020 barnden basal ganglia brain imaging me/cfs mri paper thapaliya video white matter
    • Replies: 11
    • Forum: ME/CFS research
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