me/cfs

Moderator note. This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after Covid-19 Big thanks to @Andy for posting this. I posted similar on Twitter and got very lucky It's amazing and, hopefully, this will lead to serious action by the WHO.

Couldn't find this one on the forum already. Abstract only, https://faseb.onlinelibrary.wiley.com/doi/abs/10.1096/fasebj.31.1_supplement.lb789 Published in FASEB Journal, Special Issue:Experimental Biology 2017 Meeting Abstracts, https://faseb.onlinelibrary.wiley.com/toc/15306860/2017/31/S1

Full Title: Discriminatory cytokine profiles predict muscle function, fatigue and cognitive function in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) https://www.medrxiv.org/content/10.1101/2020.08.17.20164715v1?rss=1 This was a study I took part in. Papers from...

A SWATH-MS analysis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome peripheral blood mononuclear cell proteomes reveals mitochondrial dysfunction https://www.researchsquare.com/article/rs-52172/v1

Paywall, https://journals.sagepub.com/doi/10.1177/1742395320949613 Sci hub, https://sci-hub.tw/10.1177/1742395320949613

Full title: Functional gastrointestinal disorders are increased in joint hypermobility‐related disorders with concomitant postural orthostatic tachycardia syndrome Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/nmo.13975?af=R

So I often get in discussions with BPS folks and the criticism some of them have is that we patients reject psychological treatments as a whole. As a counterargument I often refer to the Energy Envelope Theory from the DePaul that is not considered controversial by the community and that is has...

Full title: Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36 https://www.mdpi.com/2227-9032/8/3/273

I seem to have weeks going into months of brain inflammation which is horrendous. My brain feels inflamed which at night particularly seems to go throughout my body, some of the day as well. The feeling is deeply uncomfortable and quite excruciatingly painful with some throbbing, spreads across...

https://www.researchgate.net/publication/343405995_COVID-19_is_viewed_as_severe_as_Tumor_and_HIV_Perceptions_towards_Covid-19_Preprint

Dr. Jim Faas insurance physician and former chairman of the Dutch Association for Insurance Medicine, has written a blog about #LongCovid, CBT and ME. Mark Vink and I secretly helped tweaking it a bit. Really very brave of him that he dares to put this subject on this prominent medical website...

Full title: Effects of the prolong life with nine turn method (Yan Nian Jiu Zhuan) Qigong on patients with chronic fatigue syndrome: study protocol for a randomized controlled trial Open access PDF available from http://apm.amegroups.com/article/view/48615

In The Scientist. (not very long, with graphics) I thought this was quite good (particularly for new possible post-covid pwME) https://www.the-scientist.com/infographics/infographic-what-is-me-cfs-67806

The ME Association has just published it's latest guide. https://meassociation.org.uk/2020/08/now-available-the-2020-me-association-me-cfs-pvfs-clinical-and-research-guide/

https://euraxess.ec.europa.eu/jobs/545894

Elbers, R.G., Rietberg, M.B., van Wegen, E.E.H. et al. (2012), Self-report fatigue questionnaires in multiple sclerosis, Parkinson’s disease and stroke: a systematic review of measurement properties, Qual Life Res (2012) 21: 925. https://doi.org/10.1007/s11136-011-0009-2 Abstract: Chalder...

Full title: Exercise alters brain activation in Gulf War Illness and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://academic.oup.com/braincomms/article/2/2/fcaa070/5885074 The Science Times covers the story here...

Due in the Journal of the Royal Society of Medicine https://kclpure.kcl.ac.uk/portal/files/132955332/pdf_proof_re_submit.pdf https://kclpure.kcl.ac.uk/portal/en/publications/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs(67b43c92-f30b-4e21-a7b6-1b94e2ead525).html

Paywall, https://link.springer.com/article/10.1007/s12035-020-01939-w Sci hub, https://sci-hub.tw/10.1007/s12035-020-01939-w