I've summarised some information about the appointed NICE committee members in the attached pdf-document. I've focused on committee members with a BPS-bias, and did not delve into the lay members and ME-experts.
This thread can be used to challenge or verify the information in the pdf-document...
https://www.meassociation.org.uk/2018/11/me-association-statement-re-nice-me-cfs-guideline-review-and-committee-appointments-09-november-2018/
ME Association Statement re: NICE ME/CFS Guideline Review and Committee Appointments | 09 November 2018
Dr Charles Shepherd, Hon. Medical Adviser, ME...
I thought it might be useful to collate this information in a thread.
Perhaps keep the discussion of the guideline group in general to another thread, such as
https://www.s4me.info/threads/nice-guideline-review-a-list-of-appointees-to-the-me-cfs-guideline-committee-has-now-been-published.6197...
Moderator note:
This post and several following posts have been copied or moved from this thread about the NICE guideline review appointments to enable discussion of issues raised.
This is how I see it pan out:
All the main players are in the new or only CFS centres, all are psychological...
Just spotted this on ME Research UK's Facebook page.
[The current committee member list can be found on this page, https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents. Previously I linked directly to it but NICE keep changing the file name, this way, hopefully, the latest...
Just received notice that NICE have published their final scope for their review of the diagnosis and management guidelines.
Final scope can be viewed here, https://www.nice.org.uk/guidance/gid-ng10091/documents/final-scope
Stakeholder comments and responses from NICE can be viewed here...
Received today....
Dear all,
NICE are recruiting committee members to join the Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome guideline.
We are looking to recruit to the following positions:
· GP
· Physicians with an interest in chronic fatigue syndrome
·...
Not sure if this has been posted anywhere.
The link was included in one of the comments on David Tullers latest blog about Mayo.
"
The Guideline Process
The National Institute for Health and Care Excellence Surveillance report 2017 - Chronic fatigue syndrome/myalgic encephalomyelitis (or...
The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away!
(Full document can be found...
NICE announces next steps in updating its guideline on ME/CFS
https://www.nice.org.uk/news/article/nice-announces-next-steps-in-updating-its-guideline-on-me-cfs
"It is time for NICE to carry out a proper, independent review on the recommendation to use CBT and GET on people with ME/CFS."
(8 minutes - a short review)
Link to petition for review...
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