nice guideline

This post has been copied and following posts moved from this thread: News from Doctors with ME _________________________ https://doctorswith.me/nice-gp-update/?fbclid=IwAR1ZMm-vonxTrWuBBhnXfi_TnrqJO4i9FsC8X9ZgOtRAkgf6U0xB6MFV-gU Isn't this stretching the truth somewhat? ... No matter what...

Split from this thread: UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion _____________ @dave30th talks to @adambeyoncelowe about the guideline review and his part in it. https://www.facebook.com/530121828/videos/938121200416367/

Copied from this thread and following posts moved I'm not sure of the formal evidence, but it does seem to be recognised by the NHS that CBT needs to be adapted for autistic people. However, antidotally I know a number of autistic peers who have been left traumatised by it.

https://www.rcpch.ac.uk/resources/me-cfs-nice-clinical-guideline-member-briefing

Just wondering whether the new NICE ME/CFS guidelines can be beneficial at all in relation to all the various UK benefit applications? Haven't really thought this through yet.

(Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United Kingdom generally. If you have comments about specific services, please post on the relevant service thread (listed below or make a new thread). We...

I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at incorrectly. As I understand it, NICE chose the longest followup points where possible, and in the case of PACE, that was 135 weeks. The GET...

I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the bottom of the page. https://www.nhs.uk/conditions/multiple-sclerosis/ I thought I would check the CFS/ME page...

Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE. The submissions were made by stakeholders in December 2020. These tables with both the...

This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and other organisations' press releases. The NICE ME/CFS Guideline Project documents page gives links to: the Final Guideline the Evidence Review the...

NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). 20 October 2021 NICE will publish the guideline following a meeting of its...

Abstract Objective We investigated the effectiveness of Graded Exercise Therapy (GET) delivered to patients with Chronic Fatigue Syndrome (CFS/ME) in a routine, specialist clinic by measuring patient-reported outcome data collected prospectively over several timepoints alongside therapy...

The following letter was sent by email by the S4ME management committee to NICE to express our concerns and ask for clarifications about the 'pause' they announced to publication of the final version of the ME/CFS guideline. * a few words have been removed from this copy which refer to sections...

This post is copied and following posts moved from this thread: NICE pauses publication of updated ME/CFS guideline hours before publication was due - 17th August 2021 Other threads discussing Dr Hammond: Spoonseeker blog: A (Second) Letter to Dr Phil Hammond Dr Phil Hammond - Health Revolution...

"We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. People with ME are depending on the finalised guideline to transform the care they receive: ensuring accurate diagnosis, appropriate symptom management, and...

https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought deserves its own thread. All points I think still essentially apply during the new guideline is paused.

Hi guys now that the long awaited revision of the NICE guidance on ME/CFS is nearing completion (18th August) I thought I'd create a thread to identify studies which have been funded by the Government in the UK. Specifically do they address the draft NICE evidence review findings i.e. that the...

https://domsalisbury.github.io/mecfs/bacme_dysregulation/ I have written more about the emerging theme of a 'dysregulation model of ME/CFS' from members of BACME, and what this might actually mean in practice. Coincidentally, @Sly Saint has today posted about an addition to the BACME website...

Survey – Do GPs in Wales use NICE guidance? https://wames.org.uk/cms-english/survey-do-gps-in-wales-use-nice-guidance/