"In this series, I dig a little deeper into the meaning of psychology-related terms… but not this week. Instead, we’ll take a look at ME/CFS, and...
I saw this on Reddit. Someone had posted saying they received a letter from their ME/CFS clinic, were dreading what it might be, but it turned out...
"This guideline covers how to make shared decision making part of everyday care in all healthcare settings. It promotes ways for healthcare...
I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done...
Vink M, Vink-Niese A. The draft updated NICE guidance for ME/CFS highlights the unreliability of subjective outcome measures in non-blinded...
Split from: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 Updated NICE guidance on chronic fatigue syndrome...
Moved from this thread: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 Physios for ME View on NICE Guidelines...
Here is the Science for ME submission to NICE (The UK National Institute for Health and Care Excellence) consultation on its draft guideline:...
Copied and discussion moved from this thread: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 The Science Bit by...
Thought it could be helpful to have a thread on Jonathan's expert testimony for any further use and citation. Edwards, Jonathan CW (2020), The...
MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a...
https://www.nice.org.uk/guidance/indevelopment/gid-ng10091 Please note that the publication date for the ME/CFS guideline has changed from 14th...
Just received the following email Dear registered stakeholder, RE: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic...
Moderator note: Copied from thread here https://www.s4me.info/threads/uk-stop-graded-exercise-therapy-for-me-cfs.1301/#post-195995 The global...
Projects to support the development of the NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and...
ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019...
Some revelations about shenanigans at NICE - the IAPT team is in charge of the NICE guidelines for ME/CFS - as flagged up by Hope 4 Fibro & ME...
NICE documentation NICE guidelines 2007: Link to document 2007 NICE guidelines setup: General comments from stakeholders (CFS/ME consultation...
Appointees will not be changed...so surprising! I sent my email using ME Action tool so assume a generic reply going to all. They can ignore us...
The issue of GET and safety has of course been much discussed, especially regarding the the PACE trial authors' claims to have demonstrated its...
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