orthostatic intolerance

  1. Sly Saint

    Hemodynamics During the 10-Minute NASA Lean Test: Evidence of Circulatory Decompensation in a Subset of ME/CFS Patients-Lee,Unutmaz,Bateman May 2020

    This preprint is under consideration at Journal of Translational Medicine. Preprints are preliminary reports that have not undergone peer review. They should not be considered conclusive, used to inform clinical practice, or referenced by the media as validated information...
  2. Sly Saint

    Article: Wrexham woman's tribute to "brilliant" police officers who rushed to her aid amid medical emergency

    https://www.leaderlive.co.uk/news/18409857.wrexham-woman-thanks-police-officers-helped-amid-medical-emergency/
  3. Dolphin

    Canadian Cardiovascular Society Position Statement on Postural Orthostatic Tachycardia Syndrome (POTS) and Related Disorders of Chronic Orthostatic I

    https://www.sciencedirect.com/science/article/abs/pii/S0828282X19315508 Edited to add: Full article https://www.onlinecjc.ca/article/S0828-282X(19)31550-8/fulltext Canadian Journal of Cardiology Volume 36, Issue 3, March 2020, Pages 357-372
  4. D

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    Full title: Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia: a quantitative, controlled study using Doppler echography https://www.sciencedirect.com/science/article/pii/S2467981X20300044 Patients were classified as...
  5. D

    POTS - definition, diagnosis and symptoms

    Moderator note: This post has been copied and following posts moved from this thread: Concerns about craniocervical instability surgery in ME/CFS __________________________ Not really clear on how credible this statement is, at least in terms of POTS. I thought there were tachacardia and...
  6. Marky

    Why do we crash so quick when upright/sitting?

    Currently crashing so this will be a bit short. Was 2 hrs out to meet doctors and by the end i struggled to walk and almost had a nervous breakdown (luckily i had so many panic attacks last year after worsening that i can feel incredibly terrible without freaking out about it) It got me...
  7. ahimsa

    The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome (2019) Marvin S Medow, et al

    The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome Marvin S. Medow, PhD, Kenneth Guber, BSm Shilpan Chokshi, BS, Courtney Terilli, BSN, Paul Visintainer, PhD, Julian M. Stewart, MD, PhD...
  8. Hoopoe

    Eating improves exertion induced fatigue and symptoms of orthostatic intolerance

    Recently, I walked for longer than usual. While I was still out of the house, I gradually became more symptomatic: weaker, fatigued, dizzy, etc. After eating a slice of pizza, these symptoms improved significantly despite still being on my feet and walking. I think that is an important...
  9. theJOYdecision

    Paradigm shift to disequilibrium in the genesis of orthostatic intolerance in patients with chronic fatigue syndrome (2019) Miwa

    Paradigme shift to disequilibrium in the genesis of orthostatic intolerance in patients with chronic fatigue syndrome K Miwa European Heart Journal, Volume 40, Issue Supplement_1, October 2019 https://doi.org/10.1093/eurheartj/ehz746.0311
  10. Andy

    A Functional Cell-Based Bioassay for Assessing Adrenergic Autoantibody Activity in Postural Tachycardia Syndrome, 2019, Raj et al

    Open access at www.sciencedirect.com/science/article/pii/S2589909019300061
  11. Hoopoe

    Children with Orthostatic Intolerance Exhibit Elevated Markers of Inflammation in the Dorsal Medulla (2019) Shaltout et al

    https://www.physiology.org/doi/abs/10.1152/ajpheart.00680.2018?journalCode=ajpheart This isn't ME/CFS research but it's not unrelated either, so I thought this should be in the ME/CFS research section.
  12. Subtropical Island

    Can POTS come and go? Variability of POTS degree with PEM

    I’ve previously considered myself to be unlikely to have POTS. I can be almost normally active on very good days (paid for later). But a recent experience of tachycardia (110-135bpm when normal resting was 58-70) for days on end, and repeated instances in the days before and after that of...
  13. MeSci

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    I thought I'd put this in 'News' rather than 'Research' as it looks a bit amateurish. (Maybe Julia Newton was in a teaching capacity?) (He repeatedly misspells 'encephalomyelitis'.) Source: International Journal of Therapy and Rehabilitation Vol 26, #5 Date: June 6, 2019 URL...
  14. Trish

    Orthostatic Intolerance in chronic fatigue syndrome, 2019, R. Garner and Baraniuk

    https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-1935-y
  15. Sly Saint

    Current trial: Reducing Orthostatic Intolerance With Oral Rehydration in ME/CFS Patients 2019 - New York Medical College

    https://clinicaltrials.gov/ct2/show/study/NCT02854683
  16. J

    Fludrocortisone

    Hi, My question is has anybody tried fludrocortisone and has it made any difference? My M. E. is very severe I am bedbound does anybody know whether this would assist in enabling me to sit up in bed? I realise that you have to increase salt intake and wear compression stockings but I just...
  17. Jonathan Edwards

    Orthostatic intolerance

    This discussion has been split from the 2019 NIH conference thread I don't understand that. Orthostatic intolerance is the inability to tolerate standing up. By definition you know you have that if you have it. Maybe Dr Bateman is referring to haemodynamic changes that might be thought to...
  18. Andy

    Associations Between Autonomic and Orthostatic Self-report and Physician Ratings of Orthostatic Intolerance in Youth, 2019, Jason et al

    Paywalled at https://www.clinicaltherapeutics.com/article/S0149-2918(19)30070-0/fulltext
  19. Hoopoe

    Hypocapnic cerebral hypoperfusion: A biomarker of orthostatic intolerance (2018), Novak

    https://doi.org/10.1371/journal.pone.0204419 My take away from this: patients with hypocapnic cerebral hypoperfusion present the same symptoms as patients with POTS but can fail a tilt test due to absence of tachycardia. ME/CFS is also mentioned.
  20. Andy

    The Orthostatic Discriminant and Severity Scale (ODSS): an assessment of orthostatic intolerance, 2018, Baker et al

    Full paper (PDF file), https://link.springer.com/epdf/10.1007/s10286-018-00586-5?shared_access_token=STPXS4PtJZOInVSXh8x-Mfe4RwlQNchNByi7wbcMAY660rig95e8st82z-CMxT4KiCk81BpD7DOoNq3KMVlYwM6FCVf_FXKtfFM1z-YvJJbjMgP9QCLqADOEFlJpB88Elu-TN36S3zHCJJbtNRbx7FEiObmkUmlXDKOql6z1yPE%3D also paywalled at...
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