orthostatic intolerance

  1. Hoopoe

    Children with Orthostatic Intolerance Exhibit Elevated Markers of Inflammation in the Dorsal Medulla (2019) Shaltout et al

    https://www.physiology.org/doi/abs/10.1152/ajpheart.00680.2018?journalCode=ajpheart This isn't ME/CFS research but it's not unrelated either, so I thought this should be in the ME/CFS research section.
    • Hoopoe
    • Thread
    • 2019 autonomic dysfunction children me/cfs neuroinflammation orthostatic intolerance paper shaltout
    • Replies: 0
    • Forum: ME/CFS research
  2. Subtropical Island

    Can POTS come and go? Variability of POTS degree with PEM

    I’ve previously considered myself to be unlikely to have POTS. I can be almost normally active on very good days (paid for later). But a recent experience of tachycardia (110-135bpm when normal resting was 58-70) for days on end, and repeated instances in the days before and after that of...
  3. MeSci

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    I thought I'd put this in 'News' rather than 'Research' as it looks a bit amateurish. (Maybe Julia Newton was in a teaching capacity?) (He repeatedly misspells 'encephalomyelitis'.) Source: International Journal of Therapy and Rehabilitation Vol 26, #5 Date: June 6, 2019 URL...
    • MeSci
    • Thread
    • 2019 autonomic nervous system ballantine exercise gravity julia newton me/cfs orthostatic intolerance pots treatment
    • Replies: 78
    • Forum: ME/CFS research news
  4. Trish

    Orthostatic Intolerance in chronic fatigue syndrome, 2019, R. Garner and Baraniuk

    https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-1935-y
    • Trish
    • Thread
    • 2019 baraniuk me/cfs orthostatic intolerance paper richard garner
    • Replies: 32
    • Forum: ME/CFS research
  5. Sly Saint

    Current trial: Reducing Orthostatic Intolerance With Oral Rehydration in ME/CFS Patients 2019 - New York Medical College

    https://clinicaltrials.gov/ct2/show/study/NCT02854683
  6. J

    Fludrocortisone

    Hi, My question is has anybody tried fludrocortisone and has it made any difference? My M. E. is very severe I am bedbound does anybody know whether this would assist in enabling me to sit up in bed? I realise that you have to increase salt intake and wear compression stockings but I just...
  7. Jonathan Edwards

    Orthostatic intolerance

    This discussion has been split from the 2019 NIH conference thread I don't understand that. Orthostatic intolerance is the inability to tolerate standing up. By definition you know you have that if you have it. Maybe Dr Bateman is referring to haemodynamic changes that might be thought to...
  8. Andy

    Associations Between Autonomic and Orthostatic Self-report and Physician Ratings of Orthostatic Intolerance in Youth, 2019, Jason et al

    Paywalled at https://www.clinicaltherapeutics.com/article/S0149-2918(19)30070-0/fulltext
    • Andy
    • Thread
    • 2019 leonard jason me/cfs orthostatic intolerance paper symptoms young people
    • Replies: 0
    • Forum: ME/CFS research
  9. Hoopoe

    Hypocapnic cerebral hypoperfusion: A biomarker of orthostatic intolerance (2018), Novak

    https://doi.org/10.1371/journal.pone.0204419 My take away from this: patients with hypocapnic cerebral hypoperfusion present the same symptoms as patients with POTS but can fail a tilt test due to absence of tachycardia. ME/CFS is also mentioned.
    • Hoopoe
    • Thread
    • 2018 cardiology cerebral hypoperfusion hypocapnia me/cfs novak orthostatic intolerance paper pots tilt table test
    • Replies: 1
    • Forum: ME/CFS research
  10. Andy

    The Orthostatic Discriminant and Severity Scale (ODSS): an assessment of orthostatic intolerance, 2018, Baker et al

    Full paper (PDF file), https://link.springer.com/epdf/10.1007/s10286-018-00586-5?shared_access_token=STPXS4PtJZOInVSXh8x-Mfe4RwlQNchNByi7wbcMAY660rig95e8st82z-CMxT4KiCk81BpD7DOoNq3KMVlYwM6FCVf_FXKtfFM1z-YvJJbjMgP9QCLqADOEFlJpB88Elu-TN36S3zHCJJbtNRbx7FEiObmkUmlXDKOql6z1yPE%3D also paywalled at...
  11. Andy

    Video: Peter Rowe - Orthostatic Intolerance in EDS/HSD

  12. Andy

    Review: Postural orthostatic tachycardia syndrome: clinical presentation, aetiology and management, 2018, Fedorowski

    Open access at https://onlinelibrary.wiley.com/doi/full/10.1111/joim.12852
  13. Andy

    Verification of exercise-induced transient postural tachycardia phenotype in Gulf War Illness, 2018, Garner, Rayhan and Baraniuk

    Open access at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220213/
  14. Andy

    Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, 2018, van Campen, Rowe & Visser

    Abstract only at moment, https://www.frontiersin.org/articles/10.3389/fped.2018.00349/abstract
    • Andy
    • Thread
    • 2018 campen cardiology me/cfs orthostatic intolerance paper pots rowe tilt table test visser
    • Replies: 12
    • Forum: ME/CFS research
  15. Kalliope

    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms Introduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The...
    • Kalliope
    • Thread
    • 2018 blood volume cardiology dual isotope scan me/cfs orthostatic intolerance paper pots van campen
    • Replies: 13
    • Forum: ME/CFS research
  16. T

    Truncal ataxia or disequilibrium is an unrecognised cause of orthostatic intolerance in patients with myalgic encephalomyelitis (Miwa, 2017)

    https://onlinelibrary.wiley.com/doi/abs/10.1111/ijcp.12967
  17. Indigophoton

    Intracranial compliance is associated with symptoms of orthostatic intolerance in chronic fatigue syndrome, Finkelmeyer et al, 2018

    http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0200068
    • Indigophoton
    • Thread
    • 2018 finkelmeyer me/cfs mri neurology orthostatic intolerance paper
    • Replies: 11
    • Forum: ME/CFS research
  18. Sly Saint

    Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection

    Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection Alice M. RichardsonEmail author, Don P. Lewis, Badia Kita, Helen Ludlow, Nigel P. Groome, Mark P. Hedger, David M. de Kretser and Brett A. Lidbury...
    • Sly Saint
    • Thread
    • 2018 activin lidbury me/cfs measurement orthostatic intolerance paper richardson severity weighted standing time
    • Replies: 4
    • Forum: ME/CFS research
  19. adambeyoncelowe

    The aetiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (CFS), 2018, Miwa & Inoue

    http://www.journal-of-cardiology.com/article/S0914-5087(18)30058-3/fulltext#.WrzVHiFZs-E.twitter
    • adambeyoncelowe
    • Thread
    • 2018 cardiology disequilibrium kunihisa miwa me/cfs orthostatic intolerance paper pots symptoms
    • Replies: 2
    • Forum: ME/CFS research
  20. Jenny TipsforME

    What does your crash feel like?

    I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in mind I won’t be able to read long answers ;)) To me it feels like the top of my spine is inflamed and also the area which is likely my spleen. Light...
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