pace trial

We have a lot of threads about actions to take to support/promote this important event but no thread actually about the event itself. Parliamentary business for Tuesday 20 February 2018 House of Commons 11am - 11.30am Westminster Hall debate PACE trial and its effect on people with ME - Carol...

We already have an extensive discussion thread on the subject here, https://www.s4me.info/threads/call-to-action-westminster-hall-uk-parliamentary-debate-pace-trial-and-its-effect-on-people-with-me-carol-monaghan-february-20.2294/ This thread is intended to gather the various ways we can inform...

I have received the decision from the ICO who accept that QMUL do not hold the anonymized data. The decision is here: https://ico.org.uk/media/action-weve-taken/decision-notices/2018/2173169/fs50673373.pdf I am intending to appeal. I have also made a similar request to KCL.

I asked the MRC for the application form. I received a heavily redacted version and asked them to review. I have now received a somewhat less redacted version. I note Wessely named as collaborator and that AfME sent a letter in support of the trial (redacted). Any thoughts on whether it's...

Parliamentary business for Tuesday 20 February 2018 House of Commons 11am - 11.30am Westminster Hall debate PACE trial and its effect on people with ME - Carol Monaghan...

Hello all, I'm pleased to report that our major critique and reanalysis of the PACE trial has been accepted for publication in BMC Psychology. Title: Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and...

I thought this was worth reposting for people who may have missed it at the time. He says "the PACE trial remains an excellent trial and a model of how to deliver a complex intervention RCT." What's most worrying about this is that he was President of the Royal College of Psychiatrists, and had...

My bolding. http://www.thelancet.com/journals/laninf/article/PIIS1473-3099(17)30458-9/fulltext Proof, if we needed it, that they still don't understand the criticisms of PACE. Highlighted in @Lucibee 's blog here - https://lucibee.wordpress.com/2017/08/27/a-case-for-retraction/#more-745

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4967779/ I'm sure I've discussed this paper previously, but seeing others complaining recently about how bad the 1996 CFS report was made this line stand it. Is it publicly acknowledged Wessely took a lead with that? That was before my time, but...

Full letter (very long) and template for patients to submit their own complaints can be found here: https://t.co/YPXTiR7Vsc Dear Sir Terence ‘THE PACE STUDY AUTHORS COMPLAINT’ COMPLAINT RE AUTHORS OF PACE STUDY [Reference 1] I am referring such authors of the PACE TRIAL [Reference 1 below]...

Posted by: "Dr. Marc-Alexander Fluks" Sent: Saturday 13 January 2018 10:46 To: LOCALME <localme@yahoogroups.com>; MEACTIONUK <meactionuk@yahoogroups.com>; MECHAT-L <mechat-l@listserv.icors.org>; Colin Barton <colin.barton@btinternet.com> Subject: Alastair Miller: The prognosis of CFS/ME The...

This was from last year at some point, but it was recently mentioned again on Facebook and we didn't seem to have a thread for it here (although it is mentioned in at least one other post in another thread). http://www.centreforwelfarereform.org/library/by-az/in-the-expectation-of-recovery.html...

I just came upon this, and thought it was pretty funny how badly it has aged. The first two sentences are hilarious imo: the "obvious paradox" and then the "should be proof enough". He's showing off about the fact that he doesn't know how to think. Should be proof enough?! Acknowledge good...

It's that time of year again... when they worst people in Britain are celebrated by being given the chance to grovel on their knees in exchange for a special badge. One of this years remarkable people is Janet Wisely. I was planning to go through all the minutes of all the National Research and...

by Amy Maxmen Very long article that speaks about Dr Jose Montoya, Dr Anthony Komaroff, Dr Leonard Jason, the Rituximab trial, Dr Derya Unutmaz, the NIH program, Dr Ron Davis and David Tuller https://www.nature.com/articles/d41586-017-08965-0?WT.feed_name=subjects_biotechnology Edit: Amy...

https://www.coyneoftherealm.com/blogs/mind-the-brain/the-pace-plos-one-data-will-not-be-released-and-the-article-won-t-be-retracted

http://journals.sagepub.com/doi/pdf/10.1177/1359105317749100 New on-line version: http://journals.sagepub.com/doi/full/10.1177/1359105317722370 Removed section:

https://www.coyneoftherealm.com/blogs/mind-the-brain/better-days-when-plos-blogs-honored-my-post-about-fatal-flaws-in-the-pace-chronic-fatigue-syndrome-follow-up-study-2015

Interview by @Grigor http://anilvanderzee.com/david-tuller-and-the-space-cake-eaters/