pace trial

There is a review of the paper found here: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3 in the New England Journal of Medicine Watch Depression/Anxiety May 4, 2018 here...

What Doctors Don’t Tell You: ME: the cure that went away https://www.wddty.com/magazine/2018/june/me-the-cure-that-went-away.html Bryan Hubbard June 2018 Chronic fatigue and ME could be dramatically improved with exercise and therapy, a landmark study discovered. But it was bad science, and...

My 2011 NY Times Exchange With the PACE PIs When the PACE trial was published in early 2011, my New York Times editor sent it to me, along with the press release. As a non-staff contributor to the Times, I had started covering the debate over the mouse retrovirus hypothesis and science, but I’d...

Only just seen this (I google less frequently than I used to): https://www.whatdotheyknow.com/request/cfs_the_volume_of_objective_data#outgoing-766327 Only interesting for how little info they provide. It seems that all that is needed for QMUL to decide that they should not release data...

The PACE trial manuals no longer seem to be available from the QMUL website without a log in: https://www.qmul.ac.uk/wolfson/research-projects-a-z/current-projects/pace-trial/ Does anyone have copies of the manuals they can share here?

Also mentions her EDM: https://www.thecanary.co/exclusive/2018/05/10/an-mp-is-calling-for-a-debate-into-one-of-the-biggest-medical-scandals-of-the-21st-century/

A new blog post by @Lucibee, https://lucibee.wordpress.com/2018/05/09/pace-trial-whatever-happened-to-actigraphy/

Just saw this had picked up 4k views in the first hour, so thought it was worth mentioning: Looks like the creator is mainly a fashion vlogger, and she has a connective tissue disorder, pain, fatigue and hearing difficulties. This is her description of the vid: I've not watched it yet, but...

In response to a request on twitter, following the Montreal conference, the BJSM has invited papers (subject to the usual peer review) addressing issues with the PACE trial. Here's the full conversation for context (and for those not on twitter),

"Missing the fizz: my long battle to understand the mysteries of ME" https://www.theguardian.com/society/2018/may/06/missing-the-fizz-my-long-battle-to-understand-the-mysteries-of-me The author has written a book on pursuing alternative healthcare. PACE bit, which does link to the new...

23-second clip of a segment of Michael Sharpe's appearance on Victoria Derbyshire Talking therapies and exercise for #ME are "not magic cures but useful treatments": Professor Sharpe on his report Does anyone have the full broadcast?

The mention is only short, but I thought it might still be of interest. It's not an ideal summary imo, but still good to have more mentions of the PACE scandal around the place...

Hello, First post, here goes... I recently placed a number of Freedom of Information requests with the funders of the PACE trial, named on the QMUL website. All the funders replied to my requests. All four named funders are below, with the donations they disclosed to me: The Department...

A short piece by a firm of personal injury solicitors presumably seeing the possibility of legal action where patients have been harmed: https://www.blbchronicpain.co.uk/news/scandal-pace-trial-cfs/

Tuller looks at some of the annoying and unjustified claims Andrew Lloyd has made about the PACE trial, and those pointing out problems with it. http://www.virology.ws/2018/04/24/trial-by-error-andrew-lloyds-past-endorsement-of-pace/ Warning: probably not ideal reading before bed. It's got me...

$75,436 and even higher since this Tweet. I had a feeling someone was going to come in towards the end and take care of this. :thumbsup:

VIROLOGY BLOG'S TRIAL BY ERROR: Reporting on ME/CFS Update April 16, 2018 The Home Stretch...

I thought I might have seen this posted somewhere but can't find it. It says 2018 but from the link it might be from 2016.: " Alison Millington Mar. 22, 2018 " Living with CFS feels like being tired all the time — but it's so much more than being tired. The illness is thought to affect at...

A decent undergraduate McMaster University student video about "chronic fatigue syndrome". It covers the PACE Trial and correctly concludes the results are unreliable. Worth a watch. The case study, of a fictitious person named "Hannah", is very good. Overall, quite good for YouTube. A few...