pace trial

  1. MeSci

    Wilshire, Courtney, etc. article reviewed in NEJM Depression/Anxiety Watch

    There is a review of the paper found here: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3 in the New England Journal of Medicine Watch Depression/Anxiety May 4, 2018 here...
  2. E

    What Doctors Don’t Tell You: ME: the cure that went away

    What Doctors Don’t Tell You: ME: the cure that went away https://www.wddty.com/magazine/2018/june/me-the-cure-that-went-away.html Bryan Hubbard June 2018 Chronic fatigue and ME could be dramatically improved with exercise and therapy, a landmark study discovered. But it was bad science, and...
  3. Kalliope

    David Tuller: Trial By Error: My 2011 NY Times Exchange With the PACE PIs

    My 2011 NY Times Exchange With the PACE PIs When the PACE trial was published in early 2011, my New York Times editor sent it to me, along with the press release. As a non-staff contributor to the Times, I had started covering the debate over the mouse retrovirus hypothesis and science, but I’d...
  4. Esther12

    FOI request to QMUL on how they decided it would take too long to release information on the PACE trial

    Only just seen this (I google less frequently than I used to): https://www.whatdotheyknow.com/request/cfs_the_volume_of_objective_data#outgoing-766327 Only interesting for how little info they provide. It seems that all that is needed for QMUL to decide that they should not release data...
  5. R

    PACE trial manuals no longer accessible

    The PACE trial manuals no longer seem to be available from the QMUL website without a log in: https://www.qmul.ac.uk/wolfson/research-projects-a-z/current-projects/pace-trial/ Does anyone have copies of the manuals they can share here?
  6. Esther12

    Canary on PACE: An MP is calling for a debate into one of the ‘biggest medical scandals’ of the 21st century [with Monaghan quotes]

    Also mentions her EDM: https://www.thecanary.co/exclusive/2018/05/10/an-mp-is-calling-for-a-debate-into-one-of-the-biggest-medical-scandals-of-the-21st-century/
  7. Indigophoton

    Blog: PACE trial: Whatever happened to actigraphy?

    A new blog post by @Lucibee, https://lucibee.wordpress.com/2018/05/09/pace-trial-whatever-happened-to-actigraphy/
  8. Esther12

    youtuber: Have you been misled...? // What is PACE? // Medical Scandal

    Just saw this had picked up 4k views in the first hour, so thought it was worth mentioning: Looks like the creator is mainly a fashion vlogger, and she has a connective tissue disorder, pain, fatigue and hearing difficulties. This is her description of the vid: I've not watched it yet, but...
  9. Indigophoton

    British Journal of Sports Medicine invites submissions addressing PACE limitations

    In response to a request on twitter, following the Montreal conference, the BJSM has invited papers (subject to the usual peer review) addressing issues with the PACE trial. Here's the full conversation for context (and for those not on twitter),
  10. Esther12

    Guardian piece on ME by Nick Duerden, mentions PACE 'controversy', includes quote from Chalder. Bit of a nothing article.

    "Missing the fizz: my long battle to understand the mysteries of ME" https://www.theguardian.com/society/2018/may/06/missing-the-fizz-my-long-battle-to-understand-the-mysteries-of-me The author has written a book on pursuing alternative healthcare. PACE bit, which does link to the new...
  11. Melanie

    Prof. Michael Sharpe on Victoria Derbyshire - On CBT/GET

    23-second clip of a segment of Michael Sharpe's appearance on Victoria Derbyshire Talking therapies and exercise for #ME are "not magic cures but useful treatments": Professor Sharpe on his report Does anyone have the full broadcast?
  12. Esther12

    Canary mentions PACE in: The DWP has been caught trying to ‘coerce’ GPs into saying their patients are fit-for-work - by Steve Topple

    The mention is only short, but I thought it might still be of interest. It's not an ideal summary imo, but still good to have more mentions of the PACE scandal around the place...
  13. A

    A series of PACE funding FoI requests

    Hello, First post, here goes... I recently placed a number of Freedom of Information requests with the funders of the PACE trial, named on the QMUL website. All the funders replied to my requests. All four named funders are below, with the donations they disclosed to me: The Department...
  14. Indigophoton

    The “scandal” of the PACE trial for CFS/ME, BLB Solicitors

    A short piece by a firm of personal injury solicitors presumably seeing the possibility of legal action where patients have been harmed: https://www.blbchronicpain.co.uk/news/scandal-pace-trial-cfs/
  15. Esther12

    24 April Tuller - Trial By Error: Andrew Lloyd’s Past Endorsement of PACE

    Tuller looks at some of the annoying and unjustified claims Andrew Lloyd has made about the PACE trial, and those pointing out problems with it. http://www.virology.ws/2018/04/24/trial-by-error-andrew-lloyds-past-endorsement-of-pace/ Warning: probably not ideal reading before bed. It's got me...
  16. Melanie

    David Tuller Crowdfunding over $75k

    $75,436 and even higher since this Tweet. I had a feeling someone was going to come in towards the end and take care of this. :thumbsup:
  17. Melanie

    David Tuller Berkeley Crowdfunding Update: The Home Stretch...

    VIROLOGY BLOG'S TRIAL BY ERROR: Reporting on ME/CFS Update April 16, 2018 The Home Stretch...
  18. Sly Saint

    What it's like to have Chronic Fatigue Syndrome, an illness that makes you feel exhausted all the time

    I thought I might have seen this posted somewhere but can't find it. It says 2018 but from the link it might be from 2016.: " Alison Millington Mar. 22, 2018 " Living with CFS feels like being tired all the time — but it's so much more than being tired. The illness is thought to affect at...
  19. Indigophoton

    Michael Sharpe skewered by @JohntheJack on Twitter

  20. Webdog

    Demystifying Medicine video: "What is chronic fatigue syndrome?"

    A decent undergraduate McMaster University student video about "chronic fatigue syndrome". It covers the PACE Trial and correctly concludes the results are unreliable. Worth a watch. The case study, of a fictitious person named "Hannah", is very good. Overall, quite good for YouTube. A few...
Back
Top Bottom