parliament

http://www.virology.ws/2018/07/11/trial-by-error-my-letter-to-the-science-and-technology-committee/

This thread was created by moving posts from this thread. Several posts suggesting and agreeing to the move have been deleted or edited. My wife and I did in fact attend one of our MP's surgery appointments today. We had been allocated 10 mins and were in there more like 25 mins. Our MP is a...

Continues at http://wames.org.uk/cms-english/2018/06/timeforunrestwales-the-cabinet-secretary-for-healths-plans-for-me-cfs/

Pretty good article on BBC news website about recent parliamentary debate “Chronic fatigue syndrome, or ME, is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession - according to an MP who has been campaigning in Parliament to change...

Rochdale Online: MP calls for “much more to be done to tackle ME” http://www.rochdaleonline.co.uk/news-features/2/news-headlines/119844/mp-calls-for-much-more-to-be-done-to-tackle-me Liz McInnes, Member of Parliament for Heywood and Middleton, has called for “much more to be done to tackle ME”...

MPs demand more biomedical research for cruel ‘death sentence’ disease | 22 June 2018 http://www.meassociation.org.uk/2018/06/mps-demand-more-biomedical-research-funding-for-cruel-death-sentence-disease-22-june-2018/ ME Association Press Release, By John Siddle, 21 June 2018. MPs demanded...

Two important actions in the #MEAction report on yesterday's Westminster debate: Thank the MPs who attended We need your help to keep the momentum going. Now more than ever, it’s crucial we have the capacity to sustain and grow the impact of this work. Donate today to our crowdfunding...

http://researchbriefings.parliament.uk/ResearchBriefing/Summary/CDP-2018-0155#fullreport

For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves Rochdale News: "Now a three-hour Westminster Hall debate on Thursday afternoon (21 June, 1.30 to 4.30 pm), supported by the ME Association and other charities, will discuss treatments and research...

Well done to Carol for getting this done. Details here: https://www.meaction.net/2018/06/06/uk-secures-westminster-hall-debate-on-me/ I don't know whether this precludes a debate in the House of Commons...

https://www.bbc.co.uk/news/live/uk-scotland-scotland-politics-44355292 There are four items on the summary of what will be discussed, and the first is: The petition committee takes evidence from a young ME sufferer calling for a review of treatment I think there might be another thread on...

Only just seen this: Edit: Here's a link to it online (it was earlier this afternoon), which starts just as the discussion begins: https://parliamentlive.tv/event/index/50fb53f3-c6ea-4848-8e5d-c00d6a52f005?in=14:30:20 Thanks to @Andy for that link.

This post and some others following have been moved from another thread. A bit disturbing Facebook post from Invest in ME just now... Apparently a debate in parliament is happening today with Carol Monaghan picking up the thread from her previous debate. However, the document from which she is...

#ME Action Network have just announced a fundraiser for a U.K. organiser. “to support another year of mass awareness, medical and scientific outreach, advocacy, and community for impact like #MillionsMissing and our parliamentary actions” Edit: Link will be added when can work out how to do...

Also mentions her EDM: https://www.thecanary.co/exclusive/2018/05/10/an-mp-is-calling-for-a-debate-into-one-of-the-biggest-medical-scandals-of-the-21st-century/

" LOUGHBOROUGH MP Nicky Morgan has said she will work in Parliament to raise awareness of the devastating illness, ME. She spoke after joining viewers at a town screening of Unrest, an Oscar-shortlisted film by Harvard graduate Jen Brea which documents her life as a patient with Myalgic...

Found on twitter Interesting reading https://www.theyworkforyou.com/whall/?id=2018-04-23a.231.0&s=%28%22full+fact%22+OR+fullfact+OR+%22fullfact+org%22%29#g272.4

Here is my analysis of the response from Caroline Dinenage MP, Minster of State for Care, during the Westminster Hall Debate on PACE and its effects on people with ME: https://www.meaction.net/2018/02/26/read-about-the-westminster-hall-debate-on-the-pace-trial-and-its-effects-on-people-with-me/...

Just found this on another forum : -------------------------------------- https://petition.parliament.uk/petitions/205106 Just found this petition on Facebook about imminent changes to the NHS... "If you live in the UK, for you and your family this could well end up being the single most...

Following the stellar job done by Carol Monaghan at the debate today and the (IMO) PACE-defending, useless response from the minister, what should our next steps be? People have mentioned some things but they're buried in the the pre-debate threads. I'd like to know what Carol Monaghan thinks...