parliament

UK Gov petition (ie at 10,000 Govt will respond) currently 3567 signatures (my addition: if you fail on the one test but were previously in receipt of both benefits, you would effectively be left with nothing, pending appeal.) link here: https://petition.parliament.uk/petitions/244329

Parliament of Australia from the Minister for Families and Social Services, Mr Fletcher...

A few minutes ago, Carol Monaghan asked a question in the House about children ( with ME) being removed from loving families . I didn’t get the whole of her question - sound was off and I had to quickly turn it up- but Prime Minister answered something to the effect that she wasn’t aware of...

Becky Hatfield is trying to get a bagful of letters together for Steve Brine (think he is still Under Secretary of State for Department of Health and Social Care.....things are changing so rapidly in UK Govt). There has been a disappointing response to her Twitter and Facebook requests. so I am...

Steve Brine's Troubling Claim in Parliamentary Debate on ME I want to focus on a point Brine made regarding the importance of including updated information about ME in medical education—one of the key planks in the motion passed by unanimous voice vote on Thursday.

Moderator note: This post has been copied to create a new thread on the day of the debate. The thread on preparations for the debate is here Ways to watch live; https://parliamentlive.tv/Commons https://www.bbc.co.uk/iplayer/live/bbcparliament (UK only) (The BBC Parliament channel can also be...

Carol Monaghan Scores Another Parliamentary Debate "Carol Monaghan, a member of Parliament from the Glasgow area, has done it again. This week she is spearheading a three-hour debate in the House of Commons about the awful situation confronting ME patients in the UK. (The organizers of this...

This post and the following ones have been moved from this thread.

https://www.bbc.co.uk/news/uk-england-derbyshire-46880547 A debate has been held in parliament about a chronic pain condition after a petition attracted more than 115,000 signatures. Toby Perkins, MP for Chesterfield, organised the debate along with constituent and fibromyalgia campaigner...

Hi I've managed to get three (written) European Parliamentary questions asked on ME/CFS: Alex Mayer (S&D) Reference :E-006901/2017 Rory Palmer (S&D) Reference :E-004360/2018 Mairead McGuinness (PPE) Reference :E-006124/2018 If you Google the reference then you'll see the question. I'll update...

"House of Commons recognizes ME/FM and the Network In the House of Commons Thursday Dec 13, Member of Parliament Anita Vandenbeld made a very powerful statement recognizing the difficulties facing the ME/FM community in Canada. You can watch her statement here: Youtube...

You need to click on the "download" button and the translated letter will come up. https://translate.google.com/translate?sl=nl&tl=en&u=https%3A%2F%2Fwww.tweedekamer.nl%2Fkamerstukken%2Fbrieven_regering%2Fdetail%3Fid%3D2018Z23443%26did%3D2018D59089 Letter from the Minister for Medical Care...

:woot::woot::woot::woot::woot::woot::woot::woot: Thanks to all those who've long researched and written about PACE - it's those many, many years of work by patients such as @Tom Kindlon and others who spotted the problems from the get-go, and the support of academics such as @dave30th David...

https://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-committee/news-parliament-2017/my-science-inquiry-launch-17-19/ The Committee are asking people in the science community to submit topics that they think the committee should look into. 200 word...

My Member of Parliament Carol Monaghan MP will be at the Backbench Business Committee meeting today at 2:30 to discuss the next UK Parliamentary Debate. https://calendar.parliament.uk This link for Parliament TV below should work nearer the time...

https://www.meaction.net/2018/10/11/meet-with-your-mp-about-me-toolkit/

Adam Bandt 19 September at 16:53 · The effects of myalgic encephalomyelitis, or ME for short, are devastating enough to leave 25 per cent of sufferers housebound or bedbound and an estimated 75 per cent unable to work. But, there are no government programs supporting ME awareness in Australia...

"Don Staines explained that, given these findings, we could see that “recommendations to exercise patients are wrong” because it only places greater demand for calcium ions in the cells. This also explains why patients who meet the diagnostic criteria defined in the Canadian Consensus Criteria...

Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP http://www.margaretwilliams.me/2018/hooper-to-phillipson.pdf 16th July 2018 Dear Bridget, Many thanks for forwarding the letter of 14th June 2018 (PO-1133220) from Lord O’Shaughnessy, Parliamentary Under Secretary of...

Looks like this is supportive of Wessely's attempts to get change, as written about by @Hole Ousia: https://www.s4me.info/threads/simon-wessely-didnt-want-his-e-mail-on-a-blog-here-it-is-on-hole-ousia.5001/ Also seems relevant to claims that NICE should operate entirely independently of...