pots

I convinced my GP to let me try Mestinon about 18 months ago, but never got as far as actually trying it until now. I have been holding off because I didn't want to muddle the results by starting it too close to my last rtx dose or while I was starting out on LDN. While LDN is extremely...

https://doi.org/10.1371/journal.pone.0204419 My take away from this: patients with hypocapnic cerebral hypoperfusion present the same symptoms as patients with POTS but can fail a tilt test due to absence of tachycardia. ME/CFS is also mentioned.

Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders First 20 minutes are an introduction and offsetting MCAS against mastocytosis. After that he focuses on the type of MCAS that overlaps with POTS and EDS, mentioning the following article: JJ Lyons et...

The Neuropsychological Profile of Postural Orthostatic Tachycardia Syndrome: Sibling Case Study (Note: there is no category for research related to ME. POTS is co-morbid to ME, so it is related to ME but not ME only research) This is potentially important research to prove disability...

Moving from the present to the future of Postural Tachycardia Syndrome – What we need This is sort of related to ME as many, many of us have POTS as comorbidity. This article discusses the needs of the disease and as simple as this artile is, it is also very relevant for ME. In fact you could...

Includes an article co-written by Julia Newton. All articles open access for 12 months. https://www.sciencedirect.com/journal/autonomic-neuroscience/vol/215/suppl/C ETA: Taken out reference to open access editorial, the only open access part is the list of board members. ETA2: All articles...

Autonomic dysfunction and HPV immunization: an overview.

Open access at https://onlinelibrary.wiley.com/doi/full/10.1111/joim.12852

Open access at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220213/

Abstract only at moment, https://www.frontiersin.org/articles/10.3389/fped.2018.00349/abstract

Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms Introduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The...

I'm interested if anyone has any improved, cheap to make, hydration solutions, compared to Dr Bell's Gookinaid (mix of Salt and Potassium in water). Ideally I'd want something less reliant on lots of sugar. The classic WHO recommendation was 1 tspn salt, 6 tspn of sugar in 1 litre of water...

http://www.dysautonomiainternational.org/blog/wordpress/100000-research-grant-to-study-brain-fog-in-pots/

Paywalled at https://www.karger.com/Article/Abstract/493531#tab4

Video talk https://powerhealthtalk.com/pots-more-evidence-that-it-is-autoimmune.htm

Dr. David M. Systrom of Brigham and Women’s Hospital (Boston) is confident that his team has objective evidence of small-fiber polyneuropathy (SFPN) in 40-50% of ME patients. Dr Systrom was interviewed by Llewelyn King in this video: . I put the timestamp at the part involved with SFPN but the...

https://edition.cnn.com/2018/06/26/health/pots-tori-nick-foles-dysautonomia/index.html

Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...

Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome Authors:Xichun Yu, Hongliang Li, Taylor A. Murphy, Zachary Nuss, Jonathan Liles, Campbell Liles, Christopher E. Aston, Satish R. Raj, Artur Fedorowski, David C. Kem (from Oklahoma, Sweden and Calgary) Abstract...