pots

  1. Hoopoe

    Hypocapnic cerebral hypoperfusion: A biomarker of orthostatic intolerance (2018), Novak

    https://doi.org/10.1371/journal.pone.0204419 My take away from this: patients with hypocapnic cerebral hypoperfusion present the same symptoms as patients with POTS but can fail a tilt test due to absence of tachycardia. ME/CFS is also mentioned.
  2. Liessa

    Video: Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

    Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders First 20 minutes are an introduction and offsetting MCAS against mastocytosis. After that he focuses on the type of MCAS that overlaps with POTS and EDS, mentioning the following article: JJ Lyons et...
  3. M

    The Neuropsychological Profile of Postural Orthostatic Tachycardia Syndrome: Sibling Case Study (2018) Loughan et al.

    The Neuropsychological Profile of Postural Orthostatic Tachycardia Syndrome: Sibling Case Study (Note: there is no category for research related to ME. POTS is co-morbid to ME, so it is related to ME but not ME only research) This is potentially important research to prove disability...
  4. M

    Moving from the present to the future of Postural Tachycardia Syndrome – What we need 2018, Raj

    Moving from the present to the future of Postural Tachycardia Syndrome – What we need This is sort of related to ME as many, many of us have POTS as comorbidity. This article discusses the needs of the disease and as simple as this artile is, it is also very relevant for ME. In fact you could...
  5. Andy

    Issue of Autonomic Neuroscience dedicated to POTS

    Includes an article co-written by Julia Newton. All articles open access for 12 months. https://www.sciencedirect.com/journal/autonomic-neuroscience/vol/215/suppl/C ETA: Taken out reference to open access editorial, the only open access part is the list of board members. ETA2: All articles...
  6. Patient4Life

    Autonomic dysfunction and HPV immunization: an overview. (2018) Blitshetyn et al.

    Autonomic dysfunction and HPV immunization: an overview.
  7. Andy

    Review: Postural orthostatic tachycardia syndrome: clinical presentation, aetiology and management, 2018, Fedorowski

    Open access at https://onlinelibrary.wiley.com/doi/full/10.1111/joim.12852
  8. Andy

    Verification of exercise-induced transient postural tachycardia phenotype in Gulf War Illness, 2018, Garner, Rayhan and Baraniuk

    Open access at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220213/
  9. Andy

    Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, 2018, van Campen, Rowe & Visser

    Abstract only at moment, https://www.frontiersin.org/articles/10.3389/fped.2018.00349/abstract
  10. Kalliope

    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms Introduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The...
  11. M

    Re-Hydration

    I'm interested if anyone has any improved, cheap to make, hydration solutions, compared to Dr Bell's Gookinaid (mix of Salt and Potassium in water). Ideally I'd want something less reliant on lots of sugar. The classic WHO recommendation was 1 tspn salt, 6 tspn of sugar in 1 litre of water...
  12. Andy

    $100,000 Research Grant to Study Brain Fog in POTS

    http://www.dysautonomiainternational.org/blog/wordpress/100000-research-grant-to-study-brain-fog-in-pots/
  13. Andy

    Theory article: Chronic Fatigue Syndrome: From Chronic Fatigue to More Specific Syndromes, 2018, Blitshteyn & Chopra

    Paywalled at https://www.karger.com/Article/Abstract/493531#tab4
  14. John Mac

    POTS – More Evidence That it is Autoimmune

    Video talk https://powerhealthtalk.com/pots-more-evidence-that-it-is-autoimmune.htm
  15. rvallee

    David Systrom, researcher, Brigham and Women's Hospital, USA

    Dr. David M. Systrom of Brigham and Women’s Hospital (Boston) is confident that his team has objective evidence of small-fiber polyneuropathy (SFPN) in 40-50% of ME patients. Dr Systrom was interviewed by Llewelyn King in this video: . I put the timestamp at the part involved with SFPN but the...
  16. C

    CNN POTS article: “A doctor said it was all in her head“

    https://edition.cnn.com/2018/06/26/health/pots-tori-nick-foles-dysautonomia/index.html
  17. adreno

    Successful treatment of POTS and MCAS using LDN, immunoglobulin and antibiotics

    Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
  18. M

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome (2018) Yu et al

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome Authors:Xichun Yu, Hongliang Li, Taylor A. Murphy, Zachary Nuss, Jonathan Liles, Campbell Liles, Christopher E. Aston, Satish R. Raj, Artur Fedorowski, David C. Kem (from Oklahoma, Sweden and Calgary) Abstract...
  19. Dolphin

    Exercise Intolerance in Preload Failure Treated with Pyridostigmine (2018) Faria Urbina et al (mentions ME/CFS & POTS)

    American Journal of Respiratory and Critical Care Medicine 2018;197:A6146 Exercise Intolerance in Preload Failure Treated with Pyridostigmine M. Faria Urbina 1, R. Oliveira 2, A.L. Oaklander 3, A.B. Waxman 1, D.M. Systrom 1...
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