I think I remember reading a UK study that characterized patients by NICE, Oxford, and Fukuda and gave the prevalence of each. Does anyone remember that study and if so, could you share the study name or link?
Thanks in advance
My aim on this thread is to share the results of my digging into this question over the last couple of days. I have found several papers with very different figures and will post them in a series of posts here.
The 52% claim:
The UK document, Guidance for commissioners of services for people...
Source: Frontiers in Pediatrics
Preprint
Date: December 31, 2018
URL:
https://www.frontiersin.org/articles/10.3389/fped.2018.00435/abstract
The importance of accurate diagnosis of ME/CFS in children and adolescents: A commentary
----------------------------------------------------------...
Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning
Ashley Valdez, Elizabeth E. Hancock, Seyi Adebayo, David Kiernicki, Daniel Proskauer, John R. Attewell, Lucinda Bateman, Alfred DeMaria Jr, Charles W. Lapp5, Peter C. Rowe and...
Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review
https://bmjopen.bmj.com/content/8/9/e020817
https://link.springer.com/article/10.1007%2Fs10096-018-3265-z
Eur J Clin Microbiol Infect Dis. 2018 May 26. doi: 10.1007/s10096-018-3265-z. [Epub ahead of print]
Interferon-γ and CXCL10 responses related to complaints in patients with Q fever fatigue syndrome.
Raijmakers RPH1,2, Jansen AFM3,4...
Have been thinking about this a fair bit recently. One of the most common forms of advocacy with this illness is stressing how debilitating it is, but also how common, citing a greater prevelance than say, MS.
However, it’s difficult to know how accurate our numbers really are with this. I...
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