I have started this thread as a lot of advocacy campaigns , and some research utilise online questionnaires to gather info. The James Lind...
Promising news from Norway. The Norwegian ME Association is working together with the foundation and institution Røysumtunet with plans on...
Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected" Guest Editors: Dr. Kenneth Friedman...
The Norwegian ME Association has published a report about severe ME based on a survey among 586 ME-patients and 198 carers. The report has been...
[MEDIA] [MEDIA]
New BACME guidelines for severe ME See post #17 for copy of the 2019 BACME document and post #43 for the 2024 update " The Sussex ME Society...
I have created a website on severe ME: “A Life Hidden is dedicated to those shut away from the world because of the intense suffering of ME...
Objectives To define the prevalence of severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and its clinical characteristics in a...
The 25% ME Group: The Crushing Physical Burden of ME by Simon Lawrence of the 25% ME Group for those with severe ME on 14/08/2018...
Anyone read this book or know anything about the Essex severe ME service which was run by Prof Findley which the author Catherine Saunders got...
The long version of this clip where Howard Bloom recalls having severe ME has been viewed 500000 times in 1 day... [MEDIA]
My 33 yr old daughter is 95% bed bound. Ill for 2-3 years, and progressively getting worse though we are trying treatments with a ME specialist...
This thread has been split from the 'News from Scandinavia' thread Thought it might be useful to have a thread on news from Scandinavia....
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