survey

" Mason Foundation ME CFS Biobank Survey The Mason Foundation is a charitable trust that supports medical and scientific research on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The Mason Foundation has engaged the Nous Group (Nous) to investigate the viability of establishing...

Organised by Our Voice, The Alliance Neurological Programme and Neurological Alliance of Scotland https://link.webropolsurveys.com/Participation/Public/0367b98c-80ed-4b95-afa7-9986c78bbf1d?displayId=Uni1393759

Thought this was an interesting survey; would be even more interesting to have a similar study from the last 5 years or so to compare with. https://academic.oup.com/fampra/article/22/4/389/662664 some statements to score on: I am irritated by these patients, I am filled with despair by such...

To go straight to the survey, it's on the MEA home page, http://www.meassociation.org.uk/, towards the bottom of the page, middle column. Options are: UK M.E. Biobank Role of infection Immune system dysfunction Mitochondrial function Neurological involvement e.g. inflammation, PoTS, and...

Severely affected ME (Myalgic Encephalomyelitis) analysis report on questionnaire 25% ME Group (UK) 2004 Link to survey ME 2008: What progress Action for ME and Association of Young People with ME (UK) 2008 Link to survey Ervaringen van de achterban van patiëntenorganisaties met de...

This was pointed out in a post on another thread but I thought it'd be interesting to have it in it's own thread. To what extent has the very positive publicity surrounding 'Unrest' changed public recognition and understanding of ME/CFS in the UK? Major improvement Partial improvement Slight...

From: National ME/FM Action Network http://mefmaction.com/images/stories/quest_newsletters/Quest112.pdf A supplement to this edition contains tables with statistics on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), Multiple Chemical Sensitivities (MCS) as well...