survey

www.meassociation.org.uk/2019/08/mea-website-survey-illness-severity-and-definitions-05-august-2019/

[I could not find this posted anywhere, but admins delete this if I am duplicating.] There is a ‘survey’ on line, effectively asking people to support the retention of the current UK specialist ME provision, see https://cfs-me-nhs.onlinesurveys.ac.uk/specialist-services This survey appears...

Copied from the News from New Zealand and the Pacific Islands Just came across the NZ Health Survey. https://www.health.govt.nz/nz-health-statistics/national-collections-and-surveys/surveys/new-zealand-health-survey It looks like it could be a vehicle for getting prevalence figures of ME and...

https://www.surveymonkey.co.uk/r/afmebigsurvey Just to highlight this bit So Action for ME, a charity that are meant to represent pwME, have created a survey with so many questions that they put a warning on it that it might be too much for pwME to complete. Something seems wrong with that...

I thought that this was interesting and would be interesting to do with ME so we target our education efforts better. I was wondering whether it Can be incorporated into #MISSINGMILLIONS when our people are on the streets , perhaps giving out an information leaflet alongside? Tbh I suspect few...

https://redcap.rti.org/mecfs/surveys/?s=94JADKFCPC

https://2tired.weebly.com/home/dismissal-of-young-people-with-me-by-nhs-professionals

https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf

ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019 https://www.meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/ Lady...

In addition to ME/CFS, do you have a diagnosis of any of the following conditions? Endometriosis Fibromyalgia Hypermobility/Ehlers Danlos syndrome Interstitial Cystitis Irritable Bowel Syndrome Jaw pain - Temperomandibular Jaw Dysfunction Migraine Multiple Chemical Sensitivities Postural...

Overall, how would you describe the effect that cognitive dysfunction (“brain fog”) has on your ability to function on a day-to-day basis? Constant and severely disabling Constant and moderately disabling Constant and mildly disabling Varies between moderate and severe Varies between mild and...

Split thread

https://www.surveymonkey.co.uk/r/GQR9Y8M

If you have used private or NHS counselling to help with emotional, mental health or relationship problems linked to ME/CFS did you find it helpful? Yes - very helpful overall Yes - very helpful for some aspects Yes - quite helpful overall Yes - quite helpful for some aspects Neutral - neither...

#MEAction article with Forward ME Group statement here Take the Survey The survey closes on 31st January 2019. We are counting on the ME community to spread this across all of their networks, both online and in-person. Tag me if any technical problems with survey and I'll make sure they...

Chronic fatigue syndrome in the emergency department https://www.dovepress.com/chronic-fatigue-syndrome-in-the-emergency-department-peer-reviewed-article-OAEM Purpose: Chronic fatigue syndrome (CFS) is a debilitating disease characterized by fatigue, postexertional malaise, cognitive...

https://www.meassociation.org.uk/2019/01/me-association-website-survey-what-are-the-most-important-things-a-gp-needs-to-know-about-m-e-08-january-2019/ To go straight to the survey, visit https://www.meassociation.org.uk/ and scroll down until you find it, it looks like this

https://www.cochrane.org/news/cochrane-survey-provide-feedback-cochranes-policy-conflicts-interest

https://www.neural.org.uk/patient-experience-survey/