survey

Split thread

https://www.surveymonkey.co.uk/r/GQR9Y8M

If you have used private or NHS counselling to help with emotional, mental health or relationship problems linked to ME/CFS did you find it helpful? Yes - very helpful overall Yes - very helpful for some aspects Yes - quite helpful overall Yes - quite helpful for some aspects Neutral - neither...

#MEAction article with Forward ME Group statement here Take the Survey The survey closes on 31st January 2019. We are counting on the ME community to spread this across all of their networks, both online and in-person. Tag me if any technical problems with survey and I'll make sure they...

Chronic fatigue syndrome in the emergency department https://www.dovepress.com/chronic-fatigue-syndrome-in-the-emergency-department-peer-reviewed-article-OAEM Purpose: Chronic fatigue syndrome (CFS) is a debilitating disease characterized by fatigue, postexertional malaise, cognitive...

https://www.meassociation.org.uk/2019/01/me-association-website-survey-what-are-the-most-important-things-a-gp-needs-to-know-about-m-e-08-january-2019/ To go straight to the survey, visit https://www.meassociation.org.uk/ and scroll down until you find it, it looks like this

https://www.cochrane.org/news/cochrane-survey-provide-feedback-cochranes-policy-conflicts-interest

https://www.neural.org.uk/patient-experience-survey/

English overview, http://www.steungroep.nl/images/her_keuring_WIA_of_WAO/Her_keuringen_algemeen/Summary Ervaringen met UWV150dpi.pdf Dutch full report...

https://www.actionforme.org.uk/news/%E2%80%8Bwe-need-your-help-connect-me-survey/

Full question: Do you have a healthcare plan that is consulted, adhered to and kept up to date every time you see a healthcare professional? Available answer options: Yes - fully in place from a GP Yes - partly in place from a GP Yes - fully in place from hospital ME/CFS service Yes - partly...

I wasn't sure where to post this but social and professional stigma around this disease seems kind of relevant to what psychosocial medicine claims to be about. It's a quick survey for a university project. So unlikely to be published research but it's quick to do.

Emerge Australia conducted a health and welfare survey of 600 Australians with ME/CFS, and has released a 77 page report of the findings. The survey covers a range of topics, including time to diagnosis, key symptoms experienced, treatments which were useful. Link to report...

" What should be considered in the design of a clinic to treat complex health conditions? By Cathie Powell Copyright © 2018 Bridges & Pathways. We have an urgent request for you to respond to this State Health Survey about ‘the need for a one-stop clinic for people with chronic and complex...

The report has an English summary from pages 9 - 12. ME-pasienters erfaring med rehabiliteringsopphold (ME patients' experiences with rehabilitation stays) Some of the main findings: Slightly more than half were satisfied with the rehabilitation stay About three out of four disagree or...

My good friend Catherine Hale who is lead researcher with Chronic Illness Inclusion Project has alerted me to this survey if anyone wishes to take part: https://mailchi.mp/c4d5906abe71/take-our-survey-on-chronic-illness-and-disability Ps. I have not yet taken the survey myself so can’t...

I was surprised that there doesn't seem to be a thread on this paper given it discusses a few times the survey that was run here. In this case, I found it difficult to know whether to put this in the biomedical or psychosocial research section. I didn't think it was a good fit for either...

The European ME Alliance has been a member organisation of the European Federation of Neurological Associations since 2015 (https://www.efna.net/emea/) This survey by EFNA includes M.E. https://www.surveymonkey.com/r/EFNA-YS It's open until 21st May and findings will be published on World...

Click http://www.meassociation.org.uk/ to take part, survey is in the centre panel of their homepage, scroll towards the bottom of the page to find it.

For those interested in participating in ME/CFS research. https://redcap.is.depaul.edu/surveys/?s=YJNCDPHXTH