treatment

  1. J

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    I've just come across a patent from Fluge and Mella which looks like it was updated/published in March 2021 entitled 'Method for the treatment of chronic fatigue syndrome using an inhibitory or cytotoxic agent against plasma cells'. The description of the patent is a long read...
  2. mango

    Sweden: Recruiting: Post-covid-19 Rehab (2021) Bileviciute-Ljungar

    Indre Bileviciute-Ljungar, Swedish ME/CFS clinician-researcher and BPS proponent, is now recruiting patients to a post-covid-19 ie long covid study. It's an internet based multimodal rehabilitation program aiming to "prevent a negative course of the illness". On potential risks: The entities...
  3. Sly Saint

    Blog: Working Alongside People with Long Covid: a Psychologist’s Learning

    "Today’s guest post is written by Dr Richard Pione, a clinical psychologist, CBT therapist and former Psychological Wellbeing Practitioner. Richard has worked within several different clinical health psychology settings, with the most recent being a short-term post within a Long COVID MDT...
  4. T

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Cognitive Behavioral Therapy Improves Physical Function and Fatigue in Mild and Moderate Chronic Fatigue Syndrome: A Consecutive Randomized Controlled Trial of Standard and Short Interventions Merethe Eide Gotaas, Tore C. Stiles, Johan Håkon Bjørngaard Petter C. Borchgrevink and Egil A. Fors...
  5. Dolphin

    Ivermectin in Long-Covid Patients: A retrospective study, 2021, Del Franco et al

    https://www.researchgate.net/profile/Hector-Carvallo-2/publication/350344144_IVERMECTIN_IN_LONG-COVID_PATIENTS_A_RETROSPECTIVE_STUDY/links/605b107ea6fdccbfea00b4ef/IVERMECTIN-IN-LONG-COVID-PATIENTS-A-RETROSPECTIVE-STUDY.pdf ORIGINAL ARTICLE February 2021 DOI: 10.13140/RG.2.2.14189.51683...
  6. Dolphin

    Feasibility of Vitamin C in the treatment of post viral fatigue with focus on Long Covid, 2021, Vollbracht

    https://www.mdpi.com/2072-6643/13/4/1154
  7. Andy

    Online workshop: Treating Long Covid, 24th and 25th April

    What you need to know and what you can do in clinical practice. Long Covid is a devastating consequence of Covid-19 (SARS -CoV2) infection. It's estimated that between 10-30% of individuals infected will go on to have symptoms lasting > 12 weeks. Symptoms of fatigue, chest pain, shortness of...
  8. Sly Saint

    Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in ME/CFS: A Randomized, Double-Blind,Placebo-Controlled Trial,2021,Castro-Marrero

    Preprint Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Randomized, Double-Blind, Placebo-Controlled Trial " Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, multisystem, and...
  9. Hutan

    Spironolactone as a treatment for CFS in patients with positive Epstein Barr virus serology, 2020, Campo and Taylor

    https://onlinelibrary.wiley.com/doi/full/10.1111/imj.11_14849 (It's free access but I think it's just a poster) Jorge do Campo 1 and Vivienne Taylor 2 1 Noosa Hospital, Queensland, Australia 2 Ibuki Medical Centre, Noosa, Queensland, Australia Abstract Background: Epstein Barr Virus (EBV) is a...
  10. Sly Saint

    Idiopathic myalgic pain (fibromyalgia): supportive management and prevention with Pycnogenol®, 2021, Belcaro et al

    Abstract Background: The aim of this registry study was the prospective evaluation of the efficacy of Pycnogenol® in idiopathic fibromyalgia (FM), over 4 weeks in comparison with the standard management (SM). Methods: A SM and a Pycnogenol®+SM group were formed. Pycnogenol® supplementation...
  11. Lidia Thompson

    Antivirals as ME/CFS or Long Covid treatments (e.g. valacyclovir, valgancyclovir, amantadine)

    Split from Mail Online: Why many of those struck by Long Covid may be suffering from glandular fever: Blood tests on some patients are coming back positive for ‘ Here is a link from ME-pedia on the use use of valaciclovir. The study that is mentioned on this page showed that, " Improvement...
  12. Nixxy

    Sodium dichloroacetate

    Hello. I’m not sure what the right category was, but I wanted to share my experience with Prof Comhaire’s sodium dichloroacetate treatment. I’ve been sick since I was 16. I had an (really bad) EBV infection. A year or 5-7 after that, a hospital specializing in CFS/Fibro checked me out and...
  13. John Mac

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    Full title: Reduced endothelial function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - results from open-label cyclophosphamide intervention study Provisionally accepted https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/abstract
  14. Sid

    Lancet Psychiatry: Regulatory requirements for psychological interventions (Purgato, 2021)

    Pretty ironic seeing one of Lancet’s subjournals publishing an editorial calling out the unregulated nature of psychological interventions. https://doi.org/10.1016/S2215-0366(20)30414-4
  15. U

    Ken Ware - Neurophysics therapy

    Does anyone here know Ken Ware? Apparently he’s pretty well known for his rehabilitation work with severe spinal cord injury patients. 5 me/cfs patients (moderate/severe with pots) from the Netherlands have gone to Australia to be treated by this guy and four out five have made an amazing...
  16. A

    Babesia, babesiosis (tick-borne disease)

    New tick found in north east Scotland From Twitter - new trick in Scotland, never found in sheep.previously babesia venatorum https://www.northern-scot.co.uk/news/global-scientific-first-as-parasite-found-in-north-east-sheep-186588/ @duncan @chrisb
  17. Ryan31337

    Randomized Trial of Ivabradine in Patients With Hyperadrenergic [POTS], 2021, Taub et al

    Paywall, https://www.jacc.org/doi/full/10.1016/j.jacc.2020.12.029 Now free access (Oct 2025)
  18. John Mac

    A systematic review of nutraceutical interventions for mitochondrial dysfunctions in ME/CFS, 2021, Marshall-Gradisnik et al

    https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-021-02742-4
  19. John Mac

    Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS, 2021, Joseph et al

    https://journal.chestnet.org/article/S0012-3692(21)00256-7/fulltext EDIT: also available here: https://www.sciencedirect.com/science/article/abs/pii/S0012369221002567
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