I happened to stumble across this POTS research today:
Splanchnic Venous Compression Enhances the Effects of ß‐Blockade in the Treatment of Postural Tachycardia Syndrome
Emily C. Smith, André Diedrich, Satish R. Raj, Alfredo Gamboa, Cyndya A. Shibao, Bonnie K. Black, Amanda Peltier, Sachin Y...
I don't know if I've read that before.
I found some of it available on Amazon, so copied over the images I could get there. Sometimes different people can access different pages [edit - sorry for going OT with this, the chapter was longer than I expected].
I couldn't access p 384...
Treatment outcome in adults with chronic fatigue syndrome: a prospective study in England based on the CFS/ME National Outcomes Database
E Crawley, S M Collin, P D White, K Rimes, J A C Sterne, M T May CFS/ME National Outcomes Database
(originally published 2013)...
The feasibility and acceptability of an early intervention in primary care to prevent chronic fatigue syndrome (CFS) in adults: randomised controlled trial
https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-020-00595-0
Mervyn J Travers
Neil E O'Connell
Peter Tugwell
Christopher Eccleston
William Gibson
https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.ED000139/full
authors
Joanna Shim, Linda E Dean, Maira Karabayas, Gareth T Jones, Gary J Macfarlane, Neil Basu
Published:
26 April 2020
https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/keaa132/5825444?searchresult=1
heavily relies on Chalder Fatigue scale and cites PACE trial
Persistent Physical Symptoms Research and Treatment Unit - Kings College London; South London and Maudsley NHS Trust
for the rogues gallery of the 50 members of this team see
https://www.kcl.ac.uk/research/persistent-physical-symptoms-research-and-treatment-unit-1
It would be great if this crisis killed off behavioural sciences. Asking people to change behaviour doesn't work. Wessely and Gerada media appearances have been flipant.
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This post was copied from this thread and some responses moved: Trial By Error: What Now?
These are all supplements I have considered during the years.. But ive forgotten a lot about what ive read about them haha..
I know Fluge & Mella experimented with L-Carnitine, but I think some of the patients had side effects if remember correctly..
Has anyone here tried any of these, either...
Pre-print, https://www.biorxiv.org/content/10.1101/2020.02.20.958249v1
April 2023 - now published, see here
Achieving symptom relief in patients with ME by targeting the neuro-immune interface and inducing disease tolerance (2020) Rodriguez et al
ETA: Added word, "Pre-print".
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