treatment

  1. Andy

    Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

    If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/
  2. Webdog

    FDA approves first treatment for Pediatric MS

    https://www.nationalmssociety.org/About-the-Society/News/FDA-Expands-Use-of-Gilenya®-(fingolimod)-for-Child (bolding in original)
  3. adreno

    Successful treatment of POTS and MCAS using LDN, immunoglobulin and antibiotics

    Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
  4. C

    Department of health quoting £3.5m investment in CFS/ME to look at new approaches to treatment - misleads public

    hi I've just been listening to radio Solent at 7:40am BBC local radio. Great advocacy by local lady regarding millions missing but the main drive from her was lack of funding which was responded to at the end by the same statement from the DOH given to the newsbeat documentary about £3.5m...
  5. I

    N-acetyl cysteine (NAC)

    I have recently received my order of Jarrow N-Acetyl-L-Cysteine 600mg sustained release tablets. I am mainly hoping they will improve sleep and help stop the old wired, but tired kind of feeling. I know some take one tablet 3 times per day: am, afternoon and evening. The instructions on the...
  6. Sly Saint

    Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review - Roman P +

    Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review. Roman P1,2, Carrillo-Trabalón F3, Sánchez-Labraca N1, Cañadas F4, Estévez AF4, Cardona D1. https://www.ncbi.nlm.nih.gov/pubmed/29695180
  7. Marco

    Drinking baking soda could be an inexpensive, safe way to combat autoimmune disease

    Not addressing the underlying cause of course but by reducing inflammation associated with autoimmune diseases such as rheumatoid arthritis or lupus. It's a little bit garbled but as far as I can tell baking soda appears to reduce inflammation by inducing the cholinergic anti-inflammatory...
  8. Webdog

    New Guidelines for MS Treatment: Start Treatment Early

    https://www.everydayhealth.com/multiple-sclerosis/treatment/new-guidelines-ms-treatment-start-treatment-early/
  9. Sly Saint

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for ME/CFS, underway, Karolinska University

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Source: http://clinicaltrials.gov/show/NCT03502044 ClinicalTrials.gov processed this data on April 18, 2018 Published on...
  10. Andy

    KPAX002 as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a prospective, randomized trial, 2018, Montoya et al

    Full article in PDF format here, http://www.ijcem.com/files/ijcem0065685.pdf
  11. A

    Notes on Flaws of the Biopsychosocial Model for Treating Myalgic Encephalomyelitis

    From July 2017 with brief background, bullet points and references: http://www.investinme.org/Documents/Fact%20Sheets/Invest%20in%20ME%20Research%20-%20Flaws%20in%20BPS%20Theory%20for%20ME%20Fact%20Sheet.pdf
  12. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    Ugh, as i checked the headlines this morning i was greeted by a large photo of Prof Sir Simon smiling with Kate.... right above an article declaring that "Gps too soft on back pain", bemoaning the painkillers & surgery given out, when really pwback pain need psychosocial treatments of therapy &...
  13. T

    Press release and full paper available to journalists for important paper being published in a few days

    If any journalists would like a copy of this press release and the embargoed paper, just send me an email at tomkindlon at irishmecfs dot org or private message me (but I will need your full name) Please share widely on social media, by email, et cetera
  14. Indigophoton

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    The new paper mentioned later on in this thread, authored by Frank Comhaire, @ME/CFS, has been published, http://www.medical-hypotheses.com/article/S0306-9877(18)30105-1/fulltext
  15. Nancy Blake

    Neurolinguistic programming (NLP)

    This thread has been split from here There is a thread elsewhere discussing my Radical Care Pathway for ME/CFS, (now only available via Positive Health e journal). Because in my work as a psychotherapist, I have used NLP, I have come under the suspicion which NLP seems to arouse generally. I...
  16. Sly Saint

    Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

    raised on another thread by @MEMarge. The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has an amber 'Requires Improvement' warning having been inspected in 2016. The various checks...
  17. H

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    https://www.ncbi.nlm.nih.gov/pubmed/29471861 https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2500-3
  18. H

    A Systematic Review of Probiotic Interventions for Gastrointestinal Symptoms and Irritable Bowel Syndrome in CFS/ME (2018) Marshall-Gradisnik et al

    https://www.ncbi.nlm.nih.gov/pubmed/29464501 https://link.springer.com/article/10.1007%2Fs12602-018-9397-8
  19. Sasha

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    The claim that met my eye, on Cortene's website, was, 'We believe that a short course of treatment with CT38 may be curative.' OTOH, this seems to be some sort of commercial enterprise, being (I think) a drug company, or at least one that looks for uses for drugs (?), so maybe a bit of a pinch...
  20. Andy

    Open-label pilot for treatment targeting gut dysbiosis in ME/CFS: neuropsychological symptoms and sex comparisons, 2018, Wallis et al

    Open access at https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-018-1392-z
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