united kingdom

Ten-minute appointments: It’s not surprising patients have unfinished business with their GP (msn.com)

I've lived in Sussex the whole time I've had ME and I've only just found this. First of all its the old gripe, IE chronic fatigue used instead of chronic fatigue syndrome. I'm part way through watching the video and again its entitled living with chronic fatigue. Interesting that they say...

Abstract Long covid (persistent COVID-19) is a new disease with contested aetiology and variable prognosis. We report a 2-year ethnography of UK long covid clinics. Using a preformative lens, we show that multidisciplinary teams (MDTs) built working knowledge based on shared practices, mutual...

A year ago, @Arvo made this interesting post on the Research Funding thread. There is the question of why there is an MRC file on ME that is redacted until 2071. Is this accurate? Is there any mechanism to find out why the file is not available? And also the question of MRC Board members. Is...

From the #MEAction website: Questions to Ask Prospective MPs About ME/CFS https://www.meaction.net/2024/06/04/questions-to-ask-prospective-mps-about-me-cfs/

Programme on fabricated or induced illness (FII) on at 11:00 am UK time. Will be on website and app after broadcast. Trailer suggests includes reference to children with ME. https://www.bbc.co.uk/programmes/m00050jw

This thread is for a list of sub-national UK ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Chester MESH self help group Leeds ME Network ME North East Norfolk and Suffolk ME Patient/Carer...

Copied post From: Dr. Marc-Alexander Fluks Source: British Association of Clinicians in ME/CFS (BACME) Date: October 23, 2023 URL: https://bacme.info BACME 2023 National Services Survey Report ------------------------------------------ The BACME team are pleased to announce publication of...

Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians, and healthcare services. The threat of long COVID remains ignored by Governments, the media and public health messaging, and patients’ experiences must...

https://www.bmj.com/content/382/bmj.p1983

https://www.elft.nhs.uk/medically-unexplained-symptoms-bodily-distress-disorder

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

ONS Health state life expectancies, UK: 2018 to 2020 1. Main Points Healthy life expectancy (HLE) at birth in the UK showed no significant change between 2015 to 2017 and 2018 to 2020. In Scotland, there was a statistically significant decrease of more than a year in male HLE at birth...

The Kings Fund How does the NHS compare to the health care systems of other countries ? Siva Anandaciva *Comparing the health care systems of different countries can help politicians and policy‑makers assess how the UK health care system is performing and where it could improve. *For...

Institute for Government "This report – written jointly report by the Institute for Government and Public First, and funded by the Health Foundation – assesses why NHS hospitals are failing to deliver higher activity despite higher spending on the service and higher levels of staffing over the...

This thread has been created by merging threads and copying posts form UK news S4ME and the UK Covid Inquiry I'm still not spending much time online unfortunately so this may have been discussed elsewhere. Apologies if it has. As those of us in the UK are aware the Covid Inquiry is just...

Updated 2nd May 2023. "Apply for funding to research myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). You can get the funding through any: grants from MRC research boards MRC fellowships We would particularly welcome proposals within MRC remit that address 1 or...

I saw this post by @MEFoggyDog on Mastodon so I thought I'd share. This same hashtag - #MPDoYourJobForME - is also being used on twitter so you can search for it there. I did not watch the whole video, but the title of the document linked in the post is: Politician's Guide: How To Advocate...

Does anyone know when the old GP training video from Kings with Chalder/Gerada was published? Or any ideas how I could find out. The earliest I could find was this from 2002 https://web.archive.org/web/20021124114432/http://www.iop.kcl.ac.uk/Main/Publications/videos.html @Dolphin Thanks

updated Feb 9 2023 All the leaflets (all using CFS/ME) appear to have been modified since the new guidelines although the content looks pretty much as before. eg. Boom and Bust I don't recognise this pattern, particularly with relation to sleep. For me the worsening in sleep...