united kingdom

Split from the 2021-2 thread From today’s Politico newsletter: Shadow Work and Pensions Secretary Jonathan Ashworth will deliver a speech to the Center for Social Justice think tank this morning, pledging reforms to out-of-work support. The Labour plans involve allowing people on sickness...

Westminster (England only) Dept of H&SC Ministerial Responsibilities as of December 2022 full detail pdf= https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/1124948/2022-12-15_-_List_of_Ministerial_Responsibilities_final_for_publication.docx.pdf...

INTRODUCTION “Long COVID” is defined as symptoms that persist 12 weeks beyond the acute phase of the coronavirus-2019 (COVID-19) infection and is estimated to affect 3.0% to 11.7% of the UK population. Symptoms include headache, myalgia, fatigue, and loss of taste and smell.1 Parosmia can...

This post has been copied and following discussion moved from ME/CFS services in the United Kingdom job ad Royal Cornwall Hospitals Specialist Occupational Therapist...

Britons now have the worst access to healthcare in Europe, and it shows "For the past few months, a fierce debate has been raging over the question of what exactly is behind the sudden, sharp exodus of older British workers into economic inactivity. Is it driven by rapidly worsening health or...

https://www.pmlive.com/pharma_news/uk_government_announces_800m_boost_to_support_innovation_and_improve_patient_safety_1456936 eta: see also https://www.nihr.ac.uk/news/new-multimillion-investment-to-help-turn-research-discoveries-into-treatments-for-patients/31653 (includes list of NIHR...

See also News from Scotland _________________ Moved from the News from the MEA thread. not news from MEA as such; but anyone know about this person https://www.wandabelisle.com/ according to her website " FEATURED on

The report covers the: extraordinary meeting on 28 April 2020 41st meeting (part 1) of SaBTO on 6 October 2020 and 41st meeting (part 2) on 13 October 2020 42nd meeting (part 1) on 29 March 2021 and 42nd meeting (part 2) on 12 April 2021 activities of working parties...

Based in Harley Street so guaranteed to be pricey. conflates chronic fatigue with Chronic fatigue syndrome common symptoms Insomnia Chronic Fatigue Persistent Cough Sleep Disturbances Reoccurring Infections Congnitive Diffciulties Weight Gain Urefreshed sleep Muscle Weakness Depression...

"The ME Local Network (MELN) has been created and is being steered by local ME support groups across the UK, [...]. The aims of this network include strengthening mutual help between local support groups, sharing information and best practice, ensuring the grassroots voice is heard and feeding...

Moved post Treatment and rehabilitation of adolescents and children with complex conditions service (TRACCS) Home Our services Find a service (A-Z) Children and young people's services Treatment and rehabilitation of adolescents and children with complex conditions service (TRACCS) Living...

FT This was being discussed on Newsnight last night and I was a bit concerned that they were pinning 'economic inactivity' largely on those with LTC. https://www.ft.com/content/c333a6d8-0a56-488c-aeb8-eeb1c05a34d2 although this report would seem to say otherwise (at least for those aged...

Abstract Background Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a common, long-term condition characterised by post-exertional malaise, often with fatigue that is not significantly relieved by rest. ME/CFS has no confirmed diagnostic test or effective treatment and we lack...

https://www.thetimes.co.uk/article/hospital-has-left-my-daughter-in-me-agony-claims-mother-3kvrdzwjl Hospital has left my daughter in ME agony, claims mother July 17 2022, 12.01am Ella Copley with her mother, Joanne McKee, before her illness Ella Copley, 17, from Tingley, West Yorkshire, has...

came across this from Jan 2022 Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (or encephalopathy) (ME) Service A Prior Information Notice by NHS HAMPSHIRE, SOUTHAMPTON AND ISLE OF WIGHT CCG type Contract (Services) Duration 4 year Value £1M...

Moved posts ME Association - "Bedfordshire Chronic Fatigue Service and the new NICE guideline – feedback required" https://meassociation.org.uk/2021/11/bedfordshire-chronic-fatigue-service-and-the-new-nice-guideline-feedback-required/ Reporting about this sly bit of rebranding...

Moved posts

My Local Clinic still haven't updated their website.

NHS South Tyneside and Sunderland the website does not appear to have been updated at all: still links to the 2007 guideline and https://www.stsft.nhs.uk/services/chronic-fatigue-syndrome

Chronic Fatigue Syndrome in Children JCG0051 v3.1 Joint Trust Guideline for: the Management of: CFS/ME in Children and Young People Author/s: Dr Aravind Shastri Author/s title: Service Director Approved by: CGAP Date approved: 03/06/2022 the following is hardly visible on the web page due to...