united kingdom

I thought that in response to the Ministers statement at the debate on PACE yesterday that a break down of funding for research between psychological 'treatment' and actual biomedical research would also clearly show how skewed the research into ME is. The only figures that have been collated...

We have a lot of threads about actions to take to support/promote this important event but no thread actually about the event itself. Parliamentary business for Tuesday 20 February 2018 House of Commons 11am - 11.30am Westminster Hall debate PACE trial and its effect on people with ME - Carol...

https://www.elft.nhs.uk/service/308/Chronic-Fatigue-Service So what happened shortly before December 2016?

We already have an extensive discussion thread on the subject here, https://www.s4me.info/threads/call-to-action-westminster-hall-uk-parliamentary-debate-pace-trial-and-its-effect-on-people-with-me-carol-monaghan-february-20.2294/ This thread is intended to gather the various ways we can inform...

Article in the Guardian Friday Feb 9th 2018 'Substantial minority' of disability claimants failed by system – MPs https://www.theguardian.com/politics/2018/feb/09/disability-claimants-substantial-minority-failed-by-assessment-system-mps-committee

Parliamentary business for Tuesday 20 February 2018 House of Commons 11am - 11.30am Westminster Hall debate PACE trial and its effect on people with ME - Carol Monaghan...

http://www.sleep-journal.com/article/S1389-9457(18)30017-0/fulltext?cc=y= Simon M. Collin, Tom Norris, Paul Gringras, Peter S. Blair, Kate Tilling, Esther Crawley Abstract Objective /Background: Sleep abnormalities are characteristic of chronic fatigue syndrome (CFS, also known as ‘ME’), but...

This was highlighted on @Tom Kindlon 's Facebook page. Delightful presentation from just under a year ago from King's Health Partners (https://www.kingshealthpartners.org/), explaining how, among other conditions, CFS is a MUS (or Persistent Physical Symptoms condition, the term us patients...

" Why primary care needs to migrate to SNOMED CT Two versions of clinical codes (Read v2 and CTV3) currently exist in General Practice. Not all GP systems use the same coding system. Parts of the Read code vocabulary are full and new codes have been allocated to unrelated areas. This makes...

Article continues here : http://www.nzherald.co.nz/world/news/article.cfm?c_id=2&objectid=11983125

Please take a moment to email Laura Pidcock MP at laura.pidcock.mp@parliament.uk with your experiences of claiming PIP before next Wednesday 31st January. I believe the system is cruel and short sighted, making sick people worse will inevitably lead to higher costs on the social care, health...

Joint Commissioning Panel for Mental Health Guidance for commissioners of services for people with medically unexplained symptoms pge 6 Functional somatic syndromes by specialty Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis https://www.jcpmh.info/wp-content/uploads/jcpmh-mus-guide.pdf

I've put both a report of my impressions of the meeting, and my list of points to raise, into this blog post. http://sallyjustme.blogspot.co.uk/2018/01/nice-stakeholder-meeting-for-cg53.html Both items also exist as "Notes" on my Facebook wall..... And now I need to sleep... xx

https://www.nrshealthcare.co.uk/articles/condition/chronic-fatigue-syndrome

This blog/ article has a few red flags..........maybe the writer should have done a bit more research or is it deliberate? Starts off OK ish..... "British people suffering from Myalgic Encephalitis otherwise known as ME or Chronic Fatigue syndrome (CFS) have suffered from over 30 years of...

As it seems a lot of people go on to develop ME following a virus (children in partic seem particularly susceptible after mono,EBV), I thought I'd take a look at the NICE guidelines for EBV. " Management How should I manage a person with suspected or confirmed glandular fever? Give information...

http://www.jpsychores.com/article/S0022-3999(17)30841-3/pdf posted by @Sly Saint in another thread, so it's getting it's own thread here.

The below is from Sheffield ME & Fibromyalgia Group. Would be grateful if people could distribute around any Sheffield related networks and/or share with people who may be interested in applying. I'll attach as a word doc too in case you want to download and send that way. Thanks! Job Vacancies...

https://twitter.com/CommonsSTC/status/936602832593149952 https://twitter.com/ivanoransky/status/936231793786793985 ParliamentLive TV (not sure if that's what IO means) is online here: http://www.parliamentlive.tv/Commons and on actual TV here: Sky (UK only): Channel 504 Virgin Media (UK)...

I had no idea that a 'Chronic Fatigue Syndrome/Myalgic Encephalomyelitis National Outcomes Database' existed. Does anyone know when it started and when it stopped?