usa

(not posted direct link to article as unsure of copyright/distribution permissions)

https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo005639&aid=10.1056/NEJMp1811661&viewType=Popup&viewClass=Audio&ctype=audiointerview&area=production&query=pfwNGTa&jwd=000020001524&jspc= I haven't listened myself yet

https://www.news-medical.net/news/20191105/UM-launches-CAR-T-clinical-trial-for-patients-with-myasthenia-gravis.aspx

https://www.nytimes.com/2019/11/02/opinion/sunday/pelosi-drug-prices-plan.html?action=click&module=Opinion&pgtype=Homepage

full article here https://asunow.asu.edu/20191017-solutions-new-degree-program-provide-more-nuanced-understanding-disability

March 30, 2020 - 8:30 AM - 5:45 PM March 31, 2020 - 8:30 AM - 1:30 PM Natcher Conference Center, NIH Campus, Bethesda, Maryland (NIH Visitor Information) ME not on list...

Here's their website: http://aaemconference.com/fall/index.php Details of speakers here: http://aaemconference.com/livestream.php Includes speakers on diverse topics including biomedical, diagnosis, treatment, theories etc about CFS, EDS, MCAS, MCS, GWI mold, toxins... Speakers include...

Are you on Reddit? If so, please upvote for OMF to receive a donation of $15,000/1 Bitcoin from an anonymous donor. Upvote the initial comment and keep the chain going. (You must be registered on Reddit to participate.) OMF are really close they just need a few more upvotes. Well worth creating...

Concert An Evening with Marian Call. Singer-songwriter Marian Call, a native Californian, makes her home in Juneau, Alaska. She has released ten albums since 2007 and her concerts have been well-received on tours in all fifty United States, Canada, Europe, and the UK. full details here...

From an email from Solve ME/CFS Initiative What you Need to Know: The Senate Appropriations Committee included our ME/CFS Advocacy Day request for Defense. If approved in the final budget, ME/CFS will be an eligible topic area for the Peer-Reviewed Medical Research Program (PRMRP), which is...

Chronic Fatigue Syndrome: Progress Towards Diagnosis And Treatment, Finally? Article is written by Henry I. Miller, physician and Senior Fellow at the Pacific Research Institute. He has also been a Research Fellow at the National Institutes of Health and the founding director of the Office of...

At the symposium today speaker Ron Tompkins announced a new website, The Harvard ME/CFS Collaboration: http://endmecfs.mgh.harvard.edu/

Article on the New Yorker Website about Incline Village and Ampligen. https://www.newyorker.com/culture/personal-history/a-town-for-people-with-chronic-fatigue

Webinar/Online Tuesday, September 10, 2019 at 12:30pm ET - 1:30pm ET Info Speaker(s) Robert Pendergrast, MD, FAAP Professor Department of Pediatrics Medical College of Georgia Augusta, Georgia Credits Offered This event offers 1.0 CE credit to attendees. Accredited by Georgia Nurses...

Open Medicine Foundation Canada: https://www.omfcanada.ngo/?utm_source=email&utm_medium=news I donate to the OMF - can now receive a Canadian tax receipt ETA: It would be great to see some OMF funds going to Canadian ME researchers - there are collaborations, but I don't know if funds are...

For people in US A lot of information https://howtogeton.wordpress.com/social-security-disability/

July 2019 Solve ME Webinar: Disability Insurance for ME/CFS Disability Insurance Attorney Andrew Kantor from Kantor & Kantor, LLP joins us to explain the ins and outs of filing for disability under an ERISA (employer-sponsored) Policy when disabled from ME/CFS. Register for the webinar here...

https://www.meaction.net/2019/06/14/congressman-jack-bergman-becomes-champion-for-me/ Always good to thank those fighting for us. They are rare and appreciation always leads to more advocacy.

Just noticed a conversation on twitter and thought it might be interesting for the forum as well Jon Stewart has just held a passionate speech on the lack of proper health care for 9/11-first responders before a House Committee in Washington. Here's some of the reactions: And then this...