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Leonard Jason: "I gave a 40 min lecture on my work with Myalgic Encephalomyelitis (ME) over the decades. In particular, I focused on the Energy Envelope and Pacing, which I consider the best helping strategy for people withe ME."

Join us on the 18th of October when Dr David Tuller, Senior Fellow in Public Health and Journalism at UC Berkeley’s Center for Global Public Health, will speak with us about the trope of ‘medically unexplained symptoms’ (MUS) and the bolstering of research findings to support the tenuous...

PolyBio Research Foundation Receives $1.3 Million Gift to Advance the study of SARS-CoV-2 Viral Persistence in patients with LongCovid https://polybio.org/portfolio/intestinal-tissue/

Healthful Stories, Inc. 19 subscribers 54 views 25 Sept 2022 Jo Bruce had a rapidly-progressing career in finance derailed by myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), a serious, long-term illness that affects many body systems. People with ME/CFS are often...

Very short intro to ME/CFS 2 mins 20 A brief overview of symptoms, diagnosis and treatment based on the 2021 NICE guideline. Its not being tired all the time, patients have an energy impairment that dramatically limits their activity.

Post copied from here I don't think this has been posted already. It's 1 hour long, in black and white and from 1971. However, I think many here will appreciate the ahead-of-its-time discussion about medicine, its failings and how it could and should be done properly. I expect @Jonathan...

I thought it would be good to start a thread for news and updates from Jarred Younger and his "Neuroinflammation, Pain, and Fatigue Laboratory" at UAB since he is active on Facebook and has a newsletter Link to Facebook page...

New online course on Medbridge: Lessons From Myalgic Encephalomyelitis for Long COVID presented by Todd Davenport, PT, DPT, MPH, OCS https://www.medbridgeeducation.com/course-catalog/details/lessons-from-myalgic-encephalomyelitis-for-long-covid-todd-davenport/

Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.

This post has been copied and following posts moved from this thread: Physios for ME

- In this episode Llewellyn King talks with Rivka Solomon, a longtime ME advocate and patient who lives in western Massachusetts.

Hello Guys, I wrote a blogpost on enteroviruses in myalgic encephalomyelitis focusing on John Chia's research and with a section on historical research (which was mostly conducted in the UK in the 80s and 90s). In the post I tried to provide a substantial look at this topic since it is, in...

Worth watching.

physio-pedia pretty awful entry under chronic fatigue syndrome. the good news is it says that it is currently under review. https://www.physio-pedia.com/Chronic_Fatigue_Syndrome

https://www.actionforme.org.uk/research-and-campaigns/our-research-work/research-you-can-get-involved-with/ Dr Charlotte Davies webinar on her research on youtube The retrospective experiences of young adults who had Chronic Fatigue Syndrome (takes a few minutes to get going) (she says at...

Split from this thread: UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion _____________ @dave30th talks to @adambeyoncelowe about the guideline review and his part in it. https://www.facebook.com/530121828/videos/938121200416367/

A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the impact of ME on 2 million people in the EU and the lack of EU funding for ME Research. I'd be grateful if you would consider supporting it (and ask...

This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and other organisations' press releases. The NICE ME/CFS Guideline Project documents page gives links to: the Final Guideline the Evidence Review the...

This thread has been moved from the News subforum and renamed following a published paper based on Cheston's work. Respect and Shame in Healthcare and Bioethics Workshop: Peter Schaber, University of Zurich – “Respect for the Patient’s Wishes.” + ECR presentation from Katharine Cheston...