3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

[Andy]

Save the date for the 3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF. The Symposium will be held on Saturday, September 7, 2019. It will also be available on free Livestream for those unable to attend in person.

 

[Andy]

Event webpage up at https://www.omf.ngo/community-symposium-3/

 

[RDP]

Lots of people are working hard to prepare for this. I hope you all can join us at least on livestream. If you are physically present, please stop me and say hello.

 

[Saz94]

Lots of people are working hard to prepare for this. I hope you all can join us at least on livestream. If you are physically present, please stop me and say hello.

Thanks! Some of us such as myself are too severe to be able to follow the livestream, but I eagerly await the summaries and highlights afterwards!

 

[obeat]

What a delightful gentleman RDP is.

 

[Sunshine3]

What a delightful gentleman RDP is.

Yes!!!!

 

[Binkie4]

Merged thread

https://www.facebook.com/search/top/?q=open medicine foundation&epa=SEARCH_BOX


https://www.omf.ngo/2019/07/16/3rd-annual-community-symposium-speakers/

Looking forward to hearing what comes out of this.

 

[wigglethemouse]

Event webpage up at https://www.omf.ngo/community-symposium-3/

Don't forget to register for the livestream at the link above for those that want to watch any of the presentations live.

 

[dreampop]

Hoping to hear progress from Hanson, Tompkins (really like this guy), and others. Interested in what the bio-engineer is going to be looking at (maybe mass producing the nano-needle).

 

[Sly Saint]

Patient Registry is the Key to Achieving Big Data for M.E.
September 5, 2019

We were excited to see #MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, give a talk about “Big Data and myalgic encephalomyelitis (ME)” yesterday at Stanford University.

Researchers and clinicians have gathered at Stanford to discuss the latest and ongoing research into ME for the Third Annual Working Group Meeting on the Molecular Basis of ME/CFS, sponsored by the Open Medicine Foundation.

The conference ends with a community symposium on Saturday, Sept. 7th when researchers will summarize their findings for the public. Register here to watch the livestream of the symposium.

full article here
https://www.meaction.net/2019/09/05/patient-registry-is-the-key-to-achieving-big-data-for-m-e/

 

[Andy]

Patient Registry is the Key to Achieving Big Data for M.E.
September 5, 2019

full article here
https://www.meaction.net/2019/09/05/patient-registry-is-the-key-to-achieving-big-data-for-m-e/

Fortunately Solve are progressing this idea already. I wonder if this was meant to support that effort?

 

[Amw66]

 

[Sunshine3]

Disappointed that Jarred Younger can't attend...

 

[Jaybee00]

anybody on here attending in person?

Maybe someone can find out the status of the Fluge cyclophosphamide study publication? Long way to submitting/ready to submit/in review?
Or maybe he might mention something about the study during his talk other than that the results are interesting? Of course, interesting is always better than "not interesting"...

 

[Clara]

anybody on here attending in person?

Yes. Anyone else?

 

[Kalliope]

anybody on here attending in person?

Maybe someone can find out the status of the Fluge cyclophosphamide study publication? Long way to submitting/ready to submit/in review?
Or maybe he might mention something about the study during his talk other than that the results are interesting? Of course, interesting is always better than "not interesting"...

I think it is supposed to be published within 2019, but can't remember where I saw that .. Hopefully we'll learn more about the status of the study today

 

[Sly Saint]

Fluge cyclophosphamide study publication?

see #MECFS19 for lots of tweets on the past couple of days

 

[Rain]

How long does it normally take before the videos are posted on OMF YouTube channel? And do they always post all the talks?

(I can’t watch much in one sitting, live streams are difficult for many of us.)

 

[Rain]

see #MECFS19 for lots of tweets on the past couple of days

For anyone needing to save energy: little info on the content so far, practically just a list of attendants and headlines.

The real stuff starts in an hour.

 

[Ben H]

Hi guys,

I hope you're all enjoying the symposium so far. If any of you are 'twitter'ers' there are some nice updates on there. Disappointed we won't get to hear from Jarred Younger but Mike Snyder is an incredible scientist by all accounts (who is replacing his talk).


B