Aripiprazole - Abilify

[leokitten]

Salut
u have not withdrawal s effets ? Im at 0,45, i increased very slowly (0,05 each 2 weeks) since may. It s not working as well when i was at 0,25 mg... i had two months with 1500-2000 steps. I was at 1000 in september. Now im in crash (a left side sgb, bad idea), bedridden, i m increasing LDA. I think 0,05 each week. I want to test a normal (1 mg). What do u think of my strategy ? U are severe ?

I’m not sure if you are crashing and bedridden a lot while on LDA if it’s going to work for you. I’m housebound moderate normally not severe

 

[neophyte32]

I’m not sure if you are crashing and bedridden a lot while on LDA if it’s going to work for you. I’m housebound moderate normally not severe

Thanks for your answer
So u are moderate and mild with LDA.
A lot of severe patient are taking LDA, with success.
I m at 0,50 mg, i think i m gonna stop next week if i have no improvment.
I am afraid off withdrawal s effects so i will decrease to 0,35 for on week then 0,20 and stop.
It was a very good experience, 3 months with 1500-2000 steps and better screen s tolerance. Maybe it will work again next year.

 

[Arfmeister]

This is a overview I once made based on 4 sources -( so excluding the Facebook ones):

TOTAL
	Phoenix Rising-poll	**X-poll**	Martha Eckey - TREATME Survey 2023	Anecdotes	TOTAL
	3			1	4
	7			4	11
	4	54	73	9	140
	2				2	53%
	6	30	30	4	70	23%
	6	30	33	2	71	24%
					298

 

[Trish]

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[DHagen]

This is a overview I once made based on 4 sources -( so excluding the Facebook ones):

TOTAL
	Phoenix Rising-poll	**X-poll**	Martha Eckey - TREATME Survey 2023	Anecdotes	TOTAL
	3			1	4
	7			4	11
	4	54	73	9	140
	2				2	53%
	6	30	30	4	70	23%
	6	30	33	2	71	24%
					298

Thank you for sharing this. Would you be willing to clarify how this is organized?

 

[Arfmeister]

Thank you for sharing this. Would you be willing to clarify how this is organized?

Disclaimer:
As you mentioned these online polls are often simple questions and differ in their set-up.
- but poor data is always better than no data.
- especially if you want to make a decision on trying LDA

Sources:
- The TREATME Survey 2023 by Martha Eckey is actually quite detailed (50% ME CFS / 50% Long Covid)
- X-poll done in 2024
- Phoenix rising 2021
- Anecdotes (from online accounts and sometimes patients I know)

Legend Explanation:

= Major response ( > 50% improvement)
= Good response (> 10%)
Small-Medium (1-10%)*
= same / nothing happened
= worse / adverse events

(* note there’s one change I wanted to make as there 2 ’s - but I cannot make any changes in the table anymore)