Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

"Funny" how these guys co-ordinate their media strategies, but are ready to whine about patient activism if we even say a word, not to forget if we coordinate something out of their unethical eyes.

Today they've had the text in Lancet, two articles in norwegian Dagbladet and Khrono, plus this one in Daily Express. In Norway the two journalists have covered these viewpoints positively for many years. They like to bring up David Tuller as a "patient activist" too, yet themselves use the same old journalists and newspaper contacts again and again.

I think David Tuller hit the nail on the head saying that the question they're asking is Freudian projection. Like Trump they accuse their opponents for what they themselves are guilty of. It's probably a "good" tactic for them because it makes less informed persons doubt what's true and not when two parties accuse eachother of the same thing. Experienced journalists and newspaper editors should really see through such cheap tricks, unless they for some mysterious reason choose not to see through it, of course.

Is keeping ME-science in the Medieval Ages more ideology than science? Aye, it is.

 

Straight from the horse's mouth: patient-hating charlatans.

But this is not politically correct, so ideologues works fine, and is just as accurate.

Although it is kind of funny to label Tuller a patient activist, when he is not a patient. The same term regardless of status, but then they don't recognize that we are sick, and so are not patients, so it's probably the same thing to them. I still have no idea what the "cause" is even supposed to be if we are not patients, but dismissing the existence of the cause while calling it activism anyway is typical of this kind of abuse of power and reactionary politics. You see the exact same happening right now in the US, it's not similar, it's identical.

 

ideological cultist,
propagandist,
BPS cult activist

 

It's change !!! updated as of 12.39pm Sat Feb 12th https://www.express.co.uk/life-styl...symptoms-cbt-dizziness-sore-throat-joint-pain

I believe an email might have gone to Express complaints which received a very positive response from the Health editor

 

It may have changed (although having read both this and the earlier version I am not sure how) but it is still a blatant marketing piece for CBT, using the updated NICE GL as a bad guy to make a point.

As such I personally see it as a deliberate attack upon both those with ME and any 'support' of any kind, at all, that is not CBT.

 

See ME Association post (and following comments - ‘still not perfect, but, an improvement’).

A complaint was made to the Express by ForwardME, using the new NICE Guideline.

 

Not sure how relevant this is, but just for some perspective on the Daily Express:

https://www.youtube.com/watch?v=0yaRhWB7p6U

 

​

Watch out UK members, Cambridgeshire Live published an article 24 February 2022

https://www.cambridge-news.co.uk/ne...rome-symptoms-signs-23202193#comments-wrapper

written by
Sophie ChristianSEO/trends writer
Jessica Knibbs
(12:09, 24 FEB 2022)

I have informed Cambridge ME Group and am now off to check what my local “Reach” newspaper may have published too.

I suggest we all need to check our local papers in the UK for this!

 

Pseudoscientists

 

A layman can understand how it happened. NICE explains how this happened in "Evidence review A, B, C, D, E, F, G, H, I, J, for additional explanations see "Consultation comments and responses 1 & 2".

https://www.nice.org.uk/guidance/ng206/history

Brain fog effects me badly. Yet, I can easily read and see how NICE downgraded poorly designed studies. How NICE looked at long term results verses short term. There is no advanced math required to read and accept NICE's explanations. No advanced human biology required.

I don't think her question was asked in good faith.

 

Corrigendum: Cognitive Behavioral Therapy Improves Physical Function and Fatigue in Mild and Moderate Chronic Fatigue Syndrome: A Consecutive Randomized Controlled Trial of Standard and Short Interventions.

https://www.frontiersin.org/articles/10.3389/fpsyt.2022.1122220/full

 

Activist. That thing they do where they muddle the discussion by accusing us of what they are doing works both ways. Activist researchers fits a popular narrative and gives the impression they are producing evidence to fit the narrative they are selling. Which in this case is true, which makes it even more powerful.

 

This categorically shows its a bogus study. How any scientist can fall for this is astonishing. The answer, of course, is they are not scientists. They do not understand SD. I wonder if they have even properly read the PACE trial?

 

With Mild ME, but being quite bad at pacing, I got a SF36 PF of 35%. I might be closer to 40-45% now because I understand my physical energy envelope a little better, or perhaps I improved slightly.

 

Nina E. Steinkopf: A sad day for science

quote:
Despite evidence of a financial conflict of interest; after nearly two years the journal Frontiers has decided to believe in the authors and publish a worthless corrigendum. What happened to their high standard of research integrity?

https://melivet.com/2023/03/05/a-sad-day-for-science/

 

ooh, Retraction Watch is sharing Nina E. Steinkopf's article. Great that they're following this!

https://mailchi.mp/retractionwatch/...tion-frontiers-deception-detection?e=[UNIQID]