Grigor
Senior Member (Voting Rights)
Yes, but that's from 2018. She mentioned it maybe last year the year before.She says not in this article.
Yes, but that's from 2018. She mentioned it maybe last year the year before.She says not in this article.
My point was that at the time they had their surgery, neither had JHS, hEDS or EDS or met the criteria such as Beignton.Yes, but that's from 2018. She mentioned it maybe last year the year before.
Ah I understand. Yes, true.My point was that at the time they had their surgery, neither had JHS, hEDS or EDS or met the criteria such as Beignton.
What is JHS?My point was that at the time they had their surgery, neither had JHS, hEDS or EDS or met the criteria such as Beignton.
Joint hypermobility syndrome - which is supposed to include general pain.What is JHS?
Says this:She says not in this article.
While I am going to see an EDS geneticist after my surgery, based on symptom descriptions, I’m pretty sure I don’t meet the diagnostic criteria for classical EDS or any of the other testable forms.
As for hypermobile EDS (hEDS), the one type without a known genetic marker, I also don’t meet the current diagnostic criteria.
It would be fancy if they sell it as *the* cause of ME/CFS as Jeff Wood does. But such pressure could put the brain immune system on the edge similar to what concussion does, and we already know concussion can cause debilitating fatigue. Again, it may not be worth looking into if it's only one case (or even two). But it may be if there are several independent cases.As to conjuring up fancy mechanisms isn't a surgeon looking for custom, and dreaming up brain stem compression to sell, pretty much that?
In general, the purpose of this forum is to examine the evidence. I don’t think anyone should be expected to take anyone’s word for something.I take Rowe et al.'s report seriously because:
-- Dr. Rowe has been treating ME/CFS patients for 30 years. He therefore understands PEM and is unlikely to have misdiagnosed three patients.
I disagree.-- Dr. Rowe does not have a conflict of interest.
Hello! In support of their argument, the authors of this preprint cite a 2018 paper by Dr. Peter Rowe and colleagues.