Preprint Hypothesis: A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of ME/CFS and Long COVID, 2025, Jeff Wood, Kaufman et al.

[Grigor]

She says not in this article.

Yes, but that's from 2018. She mentioned it maybe last year the year before.

 

[Trish]

Yes, but that's from 2018. She mentioned it maybe last year the year before.

My point was that at the time they had their surgery, neither had JHS, hEDS or EDS or met the criteria such as Beignton.

 

[Grigor]

My point was that at the time they had their surgery, neither had JHS, hEDS or EDS or met the criteria such as Beignton.

Ah I understand. Yes, true.

 

[Chestnut tree]

My point was that at the time they had their surgery, neither had JHS, hEDS or EDS or met the criteria such as Beignton.

What is JHS?

 

[Jonathan Edwards]

What is JHS?

Joint hypermobility syndrome - which is supposed to include general pain.
There is also BJH - benign joint hypermobility, which does not imply any symptoms
These diagnoses are almost infinitely elastic.

 

[Utsikt]

She says not in this article.

Says this:

While I am going to see an EDS geneticist after my surgery, based on symptom descriptions, I’m pretty sure I don’t meet the diagnostic criteria for classical EDS or any of the other testable forms.

As for hypermobile EDS (hEDS), the one type without a known genetic marker, I also don’t meet the current diagnostic criteria.