ME Epidemiology - prevalence and peak ages of onset

[Utsikt]

I'm vaguely aware other countries might have data from national registries, like Norway?

Norwegian GPs use a different coding system than the specialists and hospitals that use ICD-10, and the code for ME/CFS is the same as the one for fatigue for GPs, so the prevalence data won’t be accurate.

And e.g. Sommerfelt talks about how barely any children get ME/CFS diagnoses from hospitals anymore, so you’d miss out on many of the young age onset patients from the pandemic.

Norway is also deep in both ME/CFS and LC denial.

 

[ScoutB]

For completeness, linking a thread that has lots of good comments about this issue:
The persistence of [ME/CFS] after SARS-CoV-2 infection: A systematic review and meta-analysis, 2024, Dehlia et al
(we had concerns about the systematic review)