Closed Mind Body Intervention for Long COVID-19 [Massachusetts, USA]

[Evergreen]

I think you're saying specifically the word "bothered" changes it from being about symptom levels, to about how symptoms are perceived, which is more susceptible to bias unrelated to improvement. And that it'd be better to choose a more direct scale that is more like "are the symptoms present >3 days a week".

I think it opens it up to misinterpreting improvement in distress as improvement in long covid.

Now, since Donnino thinks long covid is distress, he wouldn't see that as a problem.

But I do, because I found CBT good for coping, but it did nothing for my ME/CFS.

I was thinking you were moreso criticizing including the more severely affected in the trial, but I can see how this scale could be measuring something which can change even if symptoms don't change.

Oh no! Not at all.

 

[Jonathan Edwards]

A subjective outcome measure being used as an entry criterion seems to bring in a new level of bias I had not thought of. Everyone will want to juice up the scoring at the beginning to get the recruitment going. And as Graham said in that video... Human nature innit.