News about Long Covid including its relationship to ME/CFS 2020 to 2021

Ominous:

 

Management of the long term effects of COVID-19 (RCGP)

https://elearning.rcgp.org.uk/plugi...rm effects of COVID-19_formatted_29.10.20.pdf

It's not all bad. Actually many parts are actually... pertinent. Which is refreshing.

But it veers off into kookooland rather quickly:

"Consider" that all you want, you are referring to a magical skill that no human in existence has ever possessed so let's skip the pretense that such magical powers exist, perhaps? No?

And then falls completely flat by the end and promises more of the same failure:

I have so far not seen a single person with Long Covid who is "satisfied" that there is no underlying cause for their symptoms. Actually literally the opposite because people aren't as stupid as medicine seems to believe and understand that without an understanding of their symptoms, no one can help. People can connect two dots right next to one another. It's a thing that people can do.

So the approach seems to be to say a bunch of things that aren't completely wrong but remain with the existing BPS ideology, in fact double down on it. Bold strategy, let's see how it plays out.

 

Merged thread

Free full text:

http://www.ieti.net/tes/2020V4I103.html
How would a post-virus chronic fatigue syndrome affect the performance of workers that fell ill from COVID-19? (full text in pdf)

https://twitter.com/user/status/1323704932965535745

 

Anything we can collectively do to stop it playing out?

 

Long COVID Patients Warned of Damaging Exercise Programme

https://www.meaction.net/2020/11/03/long-covid-patients-warned-of-damaging-exercise-programme/

 

Whereas it's mainly people who didn't go to hospital at least from what I can make out on Twitter. It really is difficult for these people, they aren't really getting help from anywhere, and because they didn't get tested they are told they didn't have Covid so they don't get any help. It's scandalous really. I'm very worried about some of the people I follow.

 

Aftonbladet: Svåra hjärnsymtom kan drabba även de med mild covid
Professorn: Som en boxare mår efter att ha blivit knockad
https://www.aftonbladet.se/nyheter/a/PRRyaJ/svara-hjarnsymtom-kan-drabba-aven-de-med-mild-covid

Google Translate, English

 

But, but, deconditioning??

Long Covid: Oonagh Cousins, GB rower, on the effects

https://www.bbc.co.uk/sport/rowing/54702500

 

I assume that some part of this is that those who went to the ICU have follow-up medical care and so are in less dire circumstances despite being worse off. Who knew that medical care made a difference in health outcomes? What a surprise!

 

Grandiose claims rarely pan out, especially premature ones.

https://www.youtube.com/watch?v=URewvEgULkA

 

https://twitter.com/user/status/1324303556162236416

https://twitter.com/user/status/1324327451615526912

https://twitter.com/user/status/1324306425036873736

https://twitter.com/user/status/1324323341780590592

 

https://twitter.com/user/status/1324339942710038531

 

Red Clinic now says their application for ethical approval of the research project "The Scandinavian Post-CoVID Cohort Study - SPCC" has been accepted and links to an upload of the approval

 

Persistent symptoms 3 months after a SARS-CoV-2 infection: the post-COVID-19 syndrome?

https://openres.ersjournals.com/content/6/4/00542-2020

Odd mentions that this is the "first" evidence makes this paper a bit... odd. The first papers were out months ago. But overall not bad. Non-ICU only but had some hospitalized patients.

The study appears limited to a list of 29 symptoms. Which may seem like a lot but in this case misses a lot. Oblivious to PEM. Oh well.

Not a reliable predictor but initial number of symptoms appears to be significant:

That's unfortunately muddled by their limited list of symptoms, it's entirely possible that a number of new symptoms are missed simply because they didn't ask for them. A lot could be hidden in that "Others". Why is it so common in medicine to make arbitrary assumptions like that?



Hmm, and then there's... that:

 

Is this really different to other postinfectious syndromes?

 

exactly what to would expect from people who see medicine as a money making venture rather than a field of interest that would allow you to help your fellow human beings . a downstream effect is not the cause but an excuse to market a test kit that has been patented like many test kits they will be of no practical use to the people who paid for them.

 

wow

 

Bit more specific to GI symptoms but since they are common with PVFS and ME I think it's pertinent as there's no explanation for GI symptoms, whether short term of chronic. Biopsies taken at 6 months from the ileum or duodenum found virion reservoirs as well as SARS-CoV-2-specific antigens. There are other topics that are way over my head but relevant biopsy discussion is at page 20. All participants negative on a saliva PCR test.

First paper I have seen published that acknowledges the common symptom of PEM. That sure took a while. Although somehow they call it "deficit in athletic ability". First reference and it's misinterpreted. Baby steps...

But one thing that can be concluded is that if you specifically look for viral particles you may find them, even when standard tests are negative. In this study in half the cases.


Evolution of Antibody Immunity to SARS-CoV-2

https://www.biorxiv.org/content/10.1101/2020.11.03.367391v1.full.pdf

 

https://journals.lww.com/neurotoday..._Long_Haulers__Present_with_Neurologic.3.aspx