News about Long Covid including its relationship to ME/CFS 2020 to 2021

Well, my recollection is she said that she thought PACE was good (this may not have been the word she used but if not it's close) research. Next she made a comment about a prominent physician with long-COVID who initially was hesitant to exercise and wasn't recovering but then began to exercise and recovered.

Shortly after she was asked if she was familiar with the Workwell Foundation and their CPET research. She answered that no she wasn't and dismissed the comment with (I'll paraphrase from my memory) there are lots of things like that out there.

I don't think there was any ambiguity or room for misinterpretation in her comments.

These comments were all in response to questions so it's likely she hadn't planned on including them in the webinar. I'd have to question how you can do a presentation on long COVID without mentioning PEM or similarities with ME though?

 

She's been threatening to block anyone who disagrees with her on twitter ever since she got involved with long-covid.

I also recall her reminding people that she's doing her long-covid work out of the goodness of her heart and that she will walk away from it if she gets criticised too much.

Edit:


It looks like she has the same definition of 'abuse' as the PACE authors.

 

Presumably that would be the person who indicated that an ability to undertake thirty minutes light exercise constituted "recovery".

 

I suspect that TG believes all the things Wessely has told her about patients. A small group of vocal militants with false and unhelpful beliefs about the illess, like the existence of PEM. PACE a very good trial, CBT/GET safe and effective, it's just again those nasty patients trying to tear it down for no good reason.

From this point of view, ME patients would be a harmful influence on LC patients.

 

Hopefully TG will be able to learn and change her mind.

 

The COVID Tracking Project - The "Good" Metric Is Pretty Bad: Why It's Hard to Count the People Who Have Recovered from COVID-19

In November, The Covid Tracking Project stopped reporting recovery figures for the United States as a whole, and today we are also removing many, though not all, of the state-level “recovered” values from our website.

...

... many people who have had COVID-19 and have lived to tell the tale—and who are often categorized as “recovered”—don’t consider themselves to have actually recovered. COVID-19 can have many long-term health consequences, and none of the definitions for counting people who have “recovered” from COVID-19 account for latent or ongoing health issues that can be caused by COVID-19.

ETA: There's also an article in the Atlantic
https://twitter.com/user/status/1349822206000459776

 

She is being given opportunities but has not yet responded.

Her defensive, I was 'set up' posturing as a victim does not portend well.

 

She wanted to shut down debate instead of allowing it.

 

Correct.

 

Sorry I couldn't work out how to embed a retweet so I've taken a screenshot. Karim Khan retweeted part of Peter Whites commentary on the talk.

 

https://twitter.com/user/status/1350099218933960706

 

She’s a doctor with long Covid
https://twitter.com/user/status/1350108265544343559

 

https://twitter.com/user/status/1349811573964025858

https://twitter.com/user/status/1349811575314644992

https://twitter.com/user/status/1349811578292592646

https://twitter.com/user/status/1349811579492175879

https://twitter.com/user/status/1349811580364582914

 

Station: Planet Hits Radio Manchester
Date: January 15, 2021
WebRadio:
https://planetradio.co.uk/hits-radi...ester-scientist-warns-of-long-covid-epidemic/

Item: Raymond Perrin

 

Source: UK House of Commons
Date: January 14, 2021
WebTV:
https://parliamentlive.tv/Search?Keywords=Covid&Start=14/01/2021&End=14/01/2021

[Debate]

 

Continued:
https://twitter.com/user/status/1350113676611756033


https://twitter.com/user/status/1350121554043088896

 

from the debate
Debbie Abrahams

https://www.theyworkforyou.com/debates/?id=2021-01-14a.549.1&s=Chronic+Fatigue+Syndrome#g558.0

 

Can't find it, sorry. I thought I remembered the exact words but clearly not. Or maybe the term "out of scope" was in the BMJ article authored by Greenhalgh.

Searching for it however I noticed how numerous the references to "liaison psychiatry" are.

 

I'm getting the picture that she thought the talk was entirely on LC, despite ME being in the title. Either they did not communicate to her or she explicitly intended not to talk about any of it, which given the title is really odd.

Anyway at least this is something that $1.15B can crush easily so whatever, let's move on. Deniers will deny, it's what they do. It's sad that she is involved in LC but this was probably going to happen no matter what we do. There are billions in wasted spending and thousands on careers hinged on maintaining the denial, self-preservation is a powerful force.