News about Long Covid including its relationship to ME/CFS 2020 to 2021

What a terrible article. "Extreme tiredness"? It's littered with editorialized opinion.

Literally off BY 3 ORDERS OF MAGNITUDE. Where does this number even come from and why are people just making numbers up like that?

 

Haven't noticed any. It's mostly about anything physical.

But I see a lot of brain fog and people raging about how incredibly frustrating it is. Probably keeping off doing anything demanding unless absolutely necessary.

 

They probably meant 32 billion euros - but i'd agree, no idea how they arrive at such a figure

 

Just wait until they discover the term PEM.

 

https://twitter.com/user/status/1272882589267869696

https://twitter.com/user/status/1273213014553038855

 

Oh it's OK this is medicine it's not as if accuracy mattered. 1mg of morphine. 1g. Same difference when you really think about it. After all it's all about internal expectations, or something like that.

 

Many have! I've even seen it used almost exactly. Many have butted in explaining it, usually people who had mono before. Others have found it elsewhere.

Relapses. Crashes. The same vocabulary. It's frankly remarkable, how natural language comes out organically when it makes sense. Literally none of the BPS framing ever comes up. Obviously. I'm sure the explanations for this would be as entertaining as they would be absurd.

 

Terrible reply, again. This isn't about distress good grief why is it only the patient community seems to care about statements being accurate and factual?

And the article is still terrible, editorialized and cites wrong figures. Ridiculous.

 

OMF has translated the interview into English
Covid-19 and ME News Flash from Uppsala

 

If so many people are experiencing post covid fatigue, wouldn't that be something to bring to the attention of all the involved Corona epidemiologists and virologists right now?

Or are they, by their expertise, only interested in Corona spread/prevention, not its effects on the body?

Because it seems a little like post covid symptoms are now fully up to psychiatrists interpreting/framing them.

We don't hear much publicly from Corona experts or at least "real" doctors on this. Why?

 

Not in the case of the GP who originally (mis)diagnosed my caree. He put her down as TATT, but didn't believe in ME.

 

TATT was distinguished from CFS to begin with it has only gradually merged with it as CFS has become chronic fatigue then simply the symptom of fatigue.

 

Most are waiting it out. Which is smart but also dumb without adequate monitoring. The hope is that it will go away on its own, that if you don't look for it it doesn't exist and the problem will resolve itself naturally. Even though history and published literature shows otherwise. Even though it's infantile thinking that happens to be massively immoral given history. Which means the current hostile guidelines effectively guarantee the problem will have the worst possible outcome.

The simple lesson is that being dumb about things leads to terrible outcomes, atrocity in this case. Hoping a problem magically disappears if you don't look at it is absurdly unprofessional and immoral. But the belief system of conversion disorder appears to be the highest principle in medicine, it supersedes everything, exempts from the scientific process, from ethical or even moral concerns, waives all responsibility.

Moving forward it will be necessary to make conversion disorder an explicit signed affirmation with traceable accountability. The # of cases would drop by over 90% almost immediately, because no serious physician would ever make that determination on paper if it lead to accountability that can be traced back. Right now it is implicit, but essentially has force of law. Which will all but guarantee to make the problem grow to its worst possible outcome.

 

Yep, they aren't going to be treated any more seriously than us. Just more poor souls joining the fray.

 

Coronavirus: Calls for awareness of long-term effects

Actual scientists? Or BPS "scientists" / quacks. One of the large studies is happening at KCL, a BPS bastion. I wonder how that will play out in discussions between scientists and "scientists".

https://www.bbc.com/news/uk-england-south-yorkshire-53084368

 

A French politician, suffering from long-term COVID symptoms, is pushing for a law monitoring and supporting long-term COVID-19 illness.

https://www.bfmtv.com/replay-emissi...our-proteger-les-malades_VN-202006110252.html

Can't do a full summary and it's just a video but a few notes:

• Was told she had PTSD, not impressed with the suggestion
• Fundamental problem with being able to diagnose, faces a wall with physicians
• People are angry and frustrated at being told it's psychological (how vexatious!)
• 10% is beginning to emerge as the consensus finding

It's really like decades of history happening in the span of a few months. It's a common trope that some years have decades of history crammed together but this is literal here.

 

I'm beginning to see more and more accounts of people who thought they had recovered, had a few good days where they thought they were done with, and relapsed. I saw several over the weeks but they are becoming more common. It would be incredibly useful to be able to follow closely, have constant monitoring and testing during the entire phase to see those patterns.

So much fluctuation. Some straight up remain ill. Others have what seems like a recovery only to relapse. I see a lot of talk of waves of symptoms, not necessarily brought about by any exertion but others who find clear exertion triggers.

And so many had a very mild illness, sometimes literally just a mild cough. So much for the whole PTSD "traumatized by a neat-death experience". All the tropes are being dismantled thoroughly. Decades wasted on this nonsense.

Just one example but I'm seeing lots of that:

 

Whatever happens among the scientists (with or without quotation marks), the gammon is already out and shouting in the comments section – trying to link it to anything from political correctness, so-called benefit scroungers, and even Brexit. The BBC has closed it for further comments.

 

Found out about this:

https://www.coronerve.com/

From this:

How coronavirus can attack the brain

https://en.brinkwire.com/health/how-coronavirus-can-attack-the-brain/

 

I don't know where else to post this...

I have Google search alerts for some ME terms. In the last few weeks I've been seeing more and more old articles from PubMed showing up. It rarely happened in the past and likely caused by increased views and attention to those articles.

Not all good since many are BPS stuff but there appears to be growing attention. Not sure if anyone else noticed the same.