News about Long Covid including its relationship to ME/CFS 2020 to 2021

Science News: "A faulty immune response may be behind lingering brain trouble after COVID-19"


"It’s not a new idea. Immune systems gone awry have been implicated in cognitive problems that come with other viral infections such as HIV and influenza, with disorders such as myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CSF, and even from the damaging effects of chemotherapy."

"What’s different with COVID-19 is the scope of the problem. Millions of people have been infected, says neurologist Avindra Nath of the National Institutes of Health in Bethesda, Md. “We are now faced with a public health crisis,” he says."

"Tragic as the pandemic is, it may ultimately lead to something good, adds Nath, who is setting up a small clinical trial to study possible long COVID treatments. All these other syndromes such as ME/CSF that researchers have struggled to understand “might benefit from what we learn here from long COVID. We might be able to develop treatments for them all.”

(they used ME/CSF which is incorrect obviously)

 

https://www.leeds-live.co.uk/news/leeds-news/leeds-doctor-cant-work-drive-22935904.amp

https://news.sky.com/story/doctor-w...ns-plan-to-end-all-coronavirus-rules-12543375

 

https://www.bmj.com/content/376/bmj.o138

FeatureQ&A
The BMJ Interview: Peter Piot
BMJ 2022; 376 doi: https://doi.org/10.1136/bmj.o138 (Published 27 January 2022)Cite this as: BMJ 2022;376 138

The co-discoverer of the Ebola virus tells Mun-Keat Looi how he has been personally affected by long covid and what the pandemic looks like in low and middle income countries
—-

 

Haven't watched but comments are saying it's good.

https://twitter.com/user/status/1489144208892043265


Discussed on the News from Australia thread

 

(if not posted yet)

The Guardian: The great gaslighting: how Covid longhaulers are still fighting for recognition

Features Dr. Komaroff & a fair amount of ME/CFS excerpts.

 

Wow this is solid, worth reading. Can't believe this is in the Guardian, must be their international office, or they forgot how much they hate us for a minute.

The story of psychosomatic medicine is seriously one of the darkest chapters in human history outside of pure conflict, war and all the stuff that is horrible because it's the whole point.

 

I had a look. The writer Mike Mariani is from Hoboken NJ. So not from the UK.

It's probably safe to say that Ian Sample and the previous holder of the post Sarah Boseley are still engaged in upholding BPS propaganda at our expense. Just doin' their job.

 

https://www.surveymonkey.com/r/VNN5M2B

ETA: I meant to ask did anyone think this was worth sharing around?

 

Time: Long COVID Patients Are Waiting Months for Care, and the Problem May Only Get Worse

"The problem is, nobody fully understands how to cure Long COVID. In that regard, it’s similar to other mysterious and complex chronic illnesses like myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), chronic Lyme disease, and fibromyalgia. “To be frank,” Geng says, “we don’t have a curative therapy.”

 

Speaking of the author:

https://twitter.com/user/status/1489286258647916551

 

The error has been corrected, did you email the journalist?

 

No I did not.

 

Why every school needs to worry about long Covid

"School staff are among the employees most likely to suffer from long Covid – but currently, there is no clear guidance on how they should be supported if they do. So what are the problems that sufferers are facing? And what will the consequences be for education if the government fails to take action?"

https://www.tes.com/magazine/analysis/general/why-every-school-needs-worry-about-long-covid

 

Interview with among other Ed Yong.

news.com.au 'Mass disability event' warning as huge numbers diagnosed with long Covid

Quote:
Yong likened long Covid to other “marginalised” diseases.

“The piece I want to highlight, and that I think a lot of people still miss, is that long Covid has important similarities to ME/CFS, dysautonomia and other chronic, complex, marginalised conditions.

“There aren’t many scientists who study these conditions but they do exist, and their work means that we’re not starting from scratch when it comes to understanding long Covid.

“Even many scientists are unaware of this, and are thus reinventing the wheel.”

 

Anyone want to reply to this person. She is in the UK.

 

Paywalled news article in Sweden's third largest morning paper. (Cultural illness is not mentioned, thank you!)

Flera covid-sjuka vittnar om en extrem trötthet
https://www.svd.se/flera-covid-sjuka-vittnar-om-en-extrem-trotthet

 

Irish article. No mention of ME/CFS or "post viral":

Long Covid: Parents exposing kids to virus without knowing the risk, expert warns
https://www.irishexaminer.com/news/arid-40801611.html

Includes:

"Model Care

In June, the HSE published a draft ‘model of care’ for Long Covid, with a projected cost of €6.6 million.

This will cover seven clinics for people immediately after a Covid infection, and six clinics for Long Covid, as well as an epidemiological study of the syndrome.

Each clinic will be led by an infectious diseases consultant with a team to include nurse specialists, and staff from psychology and psychiatry.

A spokeswoman said the HSE is continuing to work on “implementing and resourcing” the service, including recruitment.
“It is important to advise that patients currently experiencing symptoms of post-acute and long Covid are being managed by both general practitioners and hospital consultants across the country,” she said."

 

Of all the weird things I will never be able to wrap my head around, medical doctors commonly insisting, asserting, that children are perfectly safe from an infectious disease and should in fact be infected on purpose, with a virus that clearly does not care about anyone's thoughts and beliefs about herd immunity, ranks very high. It just doesn't compute with even minimal knowledge of history and medicine, roughly half of all humans who were ever born died of infectious disease in childhood. Just an absurd moment of derp.

https://twitter.com/user/status/1490757951191142400


Actually there are treatments for this, they just don't work, and are unfit for purpose. But they do exist and have been in common use for years. Do they know even this? Probably not, even though outside the context of the pandemic, most pediatricians would be offering those treatments that both exist and don't exist depending on who you ask and what they happen to believe about the limits of medical knowledge, and a bunch of other unrelated factors.

https://twitter.com/user/status/1490695247868960782