Open Medicine Foundation (OMF)

Open Medicine Foundation Canada:

https://www.omfcanada.ngo/?utm_source=email&utm_medium=news


I donate to the OMF - can now receive a Canadian tax receipt

ETA: It would be great to see some OMF funds going to Canadian ME researchers - there are collaborations, but I don't know if funds are involved

 

https://twitter.com/user/status/1168211476529733632

https://twitter.com/user/status/1168211728037027840

https://twitter.com/user/status/1168211784068751362

 

This looks great.

 

Awesome!

 

Is this legitimate?

 

Yes

 

Yeah did a bit of research, it is.

 

As many are aware, along with the recent announcement of a federal research network, the OMF has also expanded into Canada and is looking for French Canadian translators. Quebec has pretty strict rules about content having to be made available in French so it's important for OMF to operate here.

There are a few French language translators but few from Canada and although I do write a lot in here, translation requires concentration I often don't have so more translators will be needed.

Apply at: https://omfcanada.ngo/become-a-volunteer/.

Don't have to be strictly Quebec French, but France French tends to have its own quirks. I don't use Facebook so if you do and have people who may help in your network there is a post to share if you want.

edit: doesn't look like the link is working because it's modified by the forum software.

Code:

https://www.facebook.com/OpenMedicineFoundation/photos/a.332007933570301/2173141736123569/?type=3&av=309364692501292&eav=AfZoE4QlpL5VuTWId9g7vJ3x3jM6LYnPM3R64o5IEAqq5EfROLQeERg_Ric0-JfPPHg&theater

 

Who are OMF? I'm concerned: are they looking for professional translators (in which case they ought to be paid!), just people with English and French Canadian, or what? Medical translation is a very difficult field, and potentially very dangerous if you get it wrong, so not something to be left to the inexperienced. Or is someone overseeing the translations?

 

The texts the OMF has translated by volunteers, are meant for a broad audience and are not technical

 

Open Medicine Foundation, Ron Davis' organization.

The texts are all non-technical and for a large audience that includes patients, carers and the general public. Mostly it would be the website itself and stuff like newsletters and social media posts. They could use professional translators but that's expensive and would cut into other budgets. There's already a sizeable network of volunteers, it just needs to be expanded.

The content is already translated into several languages, but the content here is specific to the Canadian subsidiary and especially important given that Alain Moreau is in Quebec, which requires registered institutions to provide French content.

 

from email

 

"The Harvard ME/CFS Collaboration’s investigators will evaluate ME/CFS patient’s blood samples that were extracted at three separate time-points: before exercise, at peak exercise, and one-hour after exercise. These studies will evaluate two separate blood compartments at these time points: the blood pumped from the heart and the blood returned to the heart. Therefore, six blood samples will be studied from each participant. Open Medicine Foundation (OMF) has raised funds for a cohort of the high-flow PLF ME/CFS patients to be compared to healthy volunteers".

I wonder if taking blood samples 14-24 hrs after exercise would have been helpful too?

 

Let's see if they find proteome changes consistent with Fisher's hypothesis.

 

from email

 

https://www.omf.ngo/2020/01/21/omf-welcomes-alain-moreau-phd-to-our-scientific-advisory-board/

 

(Google traduction)Hello, just a little summary of his study. : // www.em-action.fr/resume-deuxieme-symposium-communautaire/. Alain Moreau is studying the role of micro-circulants in patients with ME / CFS. MicroRNA is a small molecule that circulates in the body and can regulate the production of proteins and enzymes from genes. His hypothesis is that "ME / CFS is caused by a problem in the expression of microRNAs, which modulates immune functions, energy metabolism and the response to physiological stress". Dr. Moreau uses a massage cuff to stimulate a reaction in patients with ME / CFS, comparable to post-exercise discomfort. It measures the microRNA levels before and after stimulation and alteration that occur in ME / CFS patients compared to healthy controls. Significant differences were observed between patients and controls. In addition, the data can be separated into 4 subgroups concerned on the microRNA, which differs according to the expression of the symptoms. If you want to know more about his research, here is a video (OMF, 2019) that I put in another thread

https://www.youtube.com/watch?v=AY5yrva1zYY

 

I hope he's better than the standard-type "brink of a breakthrough" language suggests!