Open Medicine Foundation (OMF)

Its quite remarkable how little worthy research OMF has managed to publish taken into account how much funding they have gotten.

People would be better of funding Fluge&Mella who actually tries to find treatment within our lifetime. They do good research as well, and most importantly; they replicate.

 

Don’t agree with this assessment. ~$40 million *total* dollars in funding is basically a rounding error compared to *annual* funding budgets of many diseases in the USA.

Need hundred of millions of dollars.

https://www.fiercebiotech.com/research/top-15-nih-funded-disease-areas

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2775642

https://report.nih.gov/funding/categorical-spending#/

 

I have no idea how funds are distributed from the Sovereign Wealth Fund, but can’t any Norwegians convince the government to use some of its 1.4 trillion dollar fund to fund more of Fluge’s research?

 

Its hard to do when the psychosomatic-lobby has destroyed the public perception of ME/CFS. Also theres no sense of urgency for the politicians. Ok, people are tired - so what? People dont understand the insane symptom burden ME-patients have to endure.

 

Seems good!

Welcoming Danielle Meadows, Ph.D., as OMF’s Vice President of Research Programs & Operations

https://www.omf.ngo/welcome-danielle-meadows/

 

>>Danielle has an extensive research background spanning various institutions and projects. At Leidos, she worked on the NIH’s All of Us Research Program [this includes a PwME cohort] as a Project Manager and Biomedical Scientist, supporting the development and implementation of new modules and initiatives within the program.

In her graduate studies at the University of Delaware, Danielle focused on biomedical engineering under the guidance of Dr. Emily S. Day. Her work involved developing biodegradable nanoparticles for photothermal therapy and targeted drug delivery to treat triple-negative breast cancer, using payloads like Notch-1 antibodies, ABT-737, miR-34a, and IR820. She designed, synthesized, and characterized these nanoparticles, conducted in vitro and in vivo studies, wrote manuscripts, and presented their findings at multiple conferences.

During her undergraduate studies at the University of Notre Dame and through a research opportunity at the University of Houston, she contributed to projects studying the development of wings in Drosophila melanogaster larvae and involving mutation analysis of TAL reporters for biosensor optimization, respectively.
<<

I wonder if she will be interested in the nanoneedle?

 

"Research Updates from the Melbourne ME/CFS Collaboration" from OMF's YouTube channel

https://www.youtube.com/watch?v=rAn_lsFOrhw

I fed the transcript of the above video to Claude (AI like ChatGPT) to create a bullet point summary. I think this is an effective way to allow people without the energy to watch the video to know what it's about. And it can do a much better job summarizing it than I can. It doesn't seem to have made any mistakes, but if I shouldn't use AI generated text here, let me know and I won't in the future.

 

I'm interested in the saline trial. I wonder why Dr Feinberg selected it to study.

I've had an experience of being administered saline infusions during a week of inpatient testing for a heart issue. Some of the testing was under a GA, others involved MRIs, CTs.

I would have expected to feel PEM at some point during the week but I didn't at all, nor after stress testing on a treadmill the following week when as an outpatient I had a concurrent saline infusion.
Will be interested to see what emerges.

This post has been copied and following posts moved to Saline Infusions

 

https://www.biorxiv.org/content/10.1101/2024.06.17.599450v1?ct=

https://twitter.com/user/status/1804255909805215930