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The Chronic Elephant blog by hellytheelephant

Discussion in 'Relationships and coping' started by hellytheelephant, Feb 4, 2018.

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  1. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    Last edited by a moderator: May 28, 2022
    hellytheelephant, Nov 25, 2018
    #21
    Graham, MEMarge, Indigophoton and 8 others like this.
  2. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    Merged thread

    HOW TO COPE WITH FLARE-UPS-THE CHRONIC ELEPHANT'S GUIDE

    This Blog is about coping with a flare-up.I wrote this last year, and it has been patiently waiting to get posted! As I am flared-up at the moment, it seems like a good time to post it!

    Some of these tips are fairly basic for those of us who have been sick for decades, but I hope it will provide some insight for those who are newer to ME than I am.


    https://thechronicelephant.blogspot.com/2019/05/the-elephant-survival-guide-to-flare-up.html
     
    Last edited by a moderator: May 28, 2022
    hellytheelephant, May 7, 2019
    #22
    andypants, adambeyoncelowe, oldtimer and 14 others like this.
  3. Trish

    Trish Moderator Staff Member

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    Full of good sense as ever. Thank you @hellytheelephant. I hope your current flare up passes soon. :hug:
     
    Trish, May 7, 2019
    #23
    adambeyoncelowe, oldtimer, Mij and 10 others like this.
  4. ringding

    ringding Senior Member (Voting Rights)

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    Thank you @hellytheelephant. Also hope you improve soon.
    I've subscribed so, as a relative newbie, I look forward to reading more wisdom in the future.
     
    ringding, May 18, 2019
    #24
    hellytheelephant, adambeyoncelowe and Trish like this.
  5. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    Merged thread

    6 BOOKS THAT HAVE MADE IT EASIER TO LIVE WITH ME

    My latest Blog is about books about Chronic Health, that have been well thumbed over the years. Believe me, I have tried a lot of others that have been either unhelpful/too complicated, or just plain wrong!

    My first two choices relate to ME/CFS...and the others could be equally useful to anyone living with long term illness. One of the best things both Mr Elephant and myself have got from these books, is the sense that we are not alone. I can particularly recommend' The Technicolour...' and 'How to be sick', for finding ways of coping with changed and depleted relationships.

    I am something of a 'timed- pacing' refusnik, so I don't use the first book for that, but I know many people find this approach helpful. p8.png p5.jpg


    https://thechronicelephant.blogspot.com/2019/08/6-books-that-have-made-it-easier-to.html
     
    Last edited by a moderator: May 28, 2022
    hellytheelephant, Aug 18, 2019
    #25
    Dolphin, Keebird, diwa and 20 others like this.
  6. ahimsa

    ahimsa Senior Member (Voting Rights)

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    ahimsa, Aug 19, 2019
    #26
    Dolphin, NelliePledge, Ebb Tide and 4 others like this.
  7. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    hellytheelephant, Oct 9, 2019
    #27
    ladycatlover, Sean, Barry and 10 others like this.
  8. JemPD

    JemPD Senior Member (Voting Rights)

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    Well I just put the kettle on...… :)
     
    JemPD, Oct 9, 2019
    #28
    ladycatlover, hellytheelephant, DokaGirl and 3 others like this.
  9. alktipping

    alktipping Senior Member (Voting Rights)

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    only just finished cup of tea and mr ks almond slices other brands are available . It is very true tea is the glue of british society . but I stopped having sugar in mine twenty years ago as a way of not getting middle aged spread = the polite british way of talking about putting on the pounds in your fourties
     
    alktipping, Oct 9, 2019
    #29
    ladycatlover, hellytheelephant, DokaGirl and 2 others like this.
  10. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Loved your article @hellytheelephant

    Canadian tea drinker here.

    Yes, hard to give up tea amidst all the other banned substances that many pwME seem to have to avoid due to symptom flare ups if they transgress.
     
    DokaGirl, Oct 10, 2019
    #30
    ladycatlover, alktipping, hellytheelephant and 2 others like this.
  11. Barry

    Barry Senior Member (Voting Rights)

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    I like my tea strong ... but not that strong!
     
    Barry, Oct 10, 2019
    #31
    ladycatlover, Graham, DokaGirl and 3 others like this.
  12. Barry

    Barry Senior Member (Voting Rights)

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    NAAFI tea was (and probably still is) a stalwart. Tea would go into a huge pot at the start of the day. Throughout the day it would be topped up with more water ... and more tea ... and more water ... and more tea ... etc. A glorious mix of fresh with the interminably stewed. Strong enough to stand your spoon in :D. Brutal in its way.
     
    Barry, Oct 10, 2019
    #32
    ladycatlover, Ebb Tide, Wonko and 2 others like this.
  13. NelliePledge

    NelliePledge Moderator Staff Member

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    Also known as British Rail tea or builders tea.

    My nana’s classic comment - you like yours about half don’t you. Goodness knows what she would make of my current brew - redbush.

    The other beverage based saying is my French friend describing instant coffee as jus de chaussette aka sock water :rofl:
     
    NelliePledge, Oct 10, 2019
    #33
    Annamaria, ladycatlover, Ebb Tide and 3 others like this.
  14. JemPD

    JemPD Senior Member (Voting Rights)

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    I like mine quite weak & very milky - which I know is utter heresy lol.
    But I never drank it till I was about 30 because i'd never tried it anything but very strong builders & thought it was disgusting.... until I said yes to a cup just to be polite during a visit & was served a cup of what other people have disparagingly called 'baby' tea... & I loved it!
    I now cant get enough. I even have a travel kettle in my bedroom for when i'm not up to going downstairs to get some.
    I have to have decaff though.

    It's just so comforting :)

    Has anyone noticed that in the US they leave the tea bag in, with the string hanging down the side, so the bag hits your lip when you drink? UGH! :sick:
     
    JemPD, Oct 10, 2019
    #34
    Barry, ladycatlover, Ebb Tide and 3 others like this.
  15. TheBassist

    TheBassist Senior Member (Voting Rights)

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    Pacing, im with you, I’m not sure what I’d hope to achieve from that. I just do what I can, when I can, till I can’t. What I can do seems to be a little less week by week, and I wonder if the condition might turn severe with me, but meanwhile I just try and achieve a little something every day.
     
    Last edited: Oct 12, 2019
    TheBassist, Oct 12, 2019
    #35
    shak8, hellytheelephant, Trish and 1 other person like this.
  16. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    I took part in an online course teaching me pacing...and the instructor crashed halfway through. :banghead:Nuff said!
     
    hellytheelephant, Oct 12, 2019
    #36
    shak8, andypants and Trish like this.
  17. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    hellytheelephant, Feb 9, 2020
    #37
    Frankie, feeb, Simbindi and 10 others like this.
  18. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    hellytheelephant, Feb 9, 2020
    #38
    ProudActivist, Frankie, alktipping and 5 others like this.
  19. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    hellytheelephant, Mar 28, 2020
    #39
    Wits_End, Snow Leopard, Leila and 11 others like this.
  20. Graham

    Graham Senior Member (Voting Rights)

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    Needing 144 toilet rolls? That's gross!
     
    Graham, Mar 28, 2020
    #40
    ahimsa, hellytheelephant and zzz like this.
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