The Chronic Elephant blog by hellytheelephant

Merged thread

HOW TO COPE WITH FLARE-UPS-THE CHRONIC ELEPHANT'S GUIDE

This Blog is about coping with a flare-up.I wrote this last year, and it has been patiently waiting to get posted! As I am flared-up at the moment, it seems like a good time to post it!

Some of these tips are fairly basic for those of us who have been sick for decades, but I hope it will provide some insight for those who are newer to ME than I am.


https://thechronicelephant.blogspot.com/2019/05/the-elephant-survival-guide-to-flare-up.html
 
Last edited by a moderator:
Merged thread

6 BOOKS THAT HAVE MADE IT EASIER TO LIVE WITH ME

My latest Blog is about books about Chronic Health, that have been well thumbed over the years. Believe me, I have tried a lot of others that have been either unhelpful/too complicated, or just plain wrong!

My first two choices relate to ME/CFS...and the others could be equally useful to anyone living with long term illness. One of the best things both Mr Elephant and myself have got from these books, is the sense that we are not alone. I can particularly recommend' The Technicolour...' and 'How to be sick', for finding ways of coping with changed and depleted relationships.

I am something of a 'timed- pacing' refusnik, so I don't use the first book for that, but I know many people find this approach helpful.p8.png p5.jpg


https://thechronicelephant.blogspot.com/2019/08/6-books-that-have-made-it-easier-to.html
 
Last edited by a moderator:
only just finished cup of tea and mr ks almond slices other brands are available . It is very true tea is the glue of british society . but I stopped having sugar in mine twenty years ago as a way of not getting middle aged spread = the polite british way of talking about putting on the pounds in your fourties
 
NAAFI tea was (and probably still is) a stalwart. Tea would go into a huge pot at the start of the day. Throughout the day it would be topped up with more water ... and more tea ... and more water ... and more tea ... etc. A glorious mix of fresh with the interminably stewed. Strong enough to stand your spoon in :D. Brutal in its way.
 
Barry said:
NAAFI tea was (and probably still is) a stalwart. Tea would go into a huge pot at the start of the day. Throughout the day it would be topped up with more water ... and more tea ... and more water ... and more tea ... etc. A glorious mix of fresh with the interminably stewed. Strong enough to stand your spoon in :D. Brutal in its way.
Click to expand...
Also known as British Rail tea or builders tea.

My nana’s classic comment - you like yours about half don’t you. Goodness knows what she would make of my current brew - redbush.

The other beverage based saying is my French friend describing instant coffee as jus de chaussette aka sock water :rofl:
 
I like mine quite weak & very milky - which I know is utter heresy lol.
But I never drank it till I was about 30 because i'd never tried it anything but very strong builders & thought it was disgusting.... until I said yes to a cup just to be polite during a visit & was served a cup of what other people have disparagingly called 'baby' tea... & I loved it!
I now cant get enough. I even have a travel kettle in my bedroom for when i'm not up to going downstairs to get some.
I have to have decaff though.

It's just so comforting :)

Has anyone noticed that in the US they leave the tea bag in, with the string hanging down the side, so the bag hits your lip when you drink? UGH! :sick:
 
Pacing, im with you, I’m not sure what I’d hope to achieve from that. I just do what I can, when I can, till I can’t. What I can do seems to be a little less week by week, and I wonder if the condition might turn severe with me, but meanwhile I just try and achieve a little something every day.
 
Last edited:
TheBassist said:
Pacing, im with you, I’m not sure what I’d hope to achieve from that. I just do what I can, I when I can, till I can’t. What I can do seems to be a little less week by week, and I wonder if the condition might turn severe with me, but meanwhile I just try and achieve a little something every day.
Click to expand...

I took part in an online course teaching me pacing...and the instructor crashed halfway through. :banghead:Nuff said!
 
Last edited by a moderator:
Last edited by a moderator:
You must log in or register to reply here.
Back
Top Bottom