The ME Show

Loved it. Interview with Jen Brea went deeper than usual clips. @Hutan's quote above is an example. It is hard to face all that we have lost and I felt very emotional.
Was interested in her statement that they are showing 'Unrest' in med schools in US this year, and have plans for doing the same in UK next year.
Great programme @Gary Burgess .

 

Just listened. Thanks Gary, it was a good interview with Jen Brea and great to hear that song too. It was interesting to hear Jen with a longer interview allowing more to be discussed. It felt like a calm episode although very moving at times. I too found the part where she said that the loss and grief were too big to allow herself to feel resonated with my own experience.

Thank you for spending your precious energy making this podcast happen.

 

I'm so pleased to see this start up. I tried doing a podcast for a bit, but I couldn't keep up with it and it wasn't very well produced.

It's awesome to have a proper broadcaster put together a show like this. For those that are able to tolerate sound, I think it will mean a lot to have a voice out there that understands and talks directly to patients.

If you're ever looking for vox-pop style contributions. Keep me in mind, if I'm not busy/unwell I can record short clips at home.

 

@Gary Burgess you’ve made my day! What a real pleasure to listen to @JenB at such length and to hear from @Robert 1973 and listen to the song.

I felt connected to others and uplifted.

Great quality audio that I found nice to listen to and you have excellent interview skill.

I loved this. Really looking forward to the next episode with Dr Charles Shepherd.

Thank you.

Hope you’re doing OK and looking after yourself.

 

Great programme. Tone and balance good - time flew in. I' m looking forward to episode 2.
I will post link to family and friends
Thank you

 

That was a great inaugural episode! Thank you Gary, Jen and Robert

 

Thanks to @Robert 1973. Apologies for not mentioning your song. Have been listening to it and posting about it for a little while now. Works really well including the visual aspect. Hope it is sung at #millions missing.

 

Excellent Gary. Thank you.

 

Thank you Gary so much and also Jen and Robert, love that song so much.

 

Great show Barry, thanks so much.

 

Think you mean Gary, @MEMarge

 

Barry. Gary. Oi. It’s all good.

 

Thank you Barry.

Thank you Gary.

 

See @MEMarge ... I told you they'd notice!

 

Shouldn't post on here that late in the evening!

 

Episode two now available:

iTunes - https://itunes.apple.com/gb/podcast/episode-two/id1374903449?i=1000411357191&mt=2
or via your browser - https://www.buzzsprout.com/172265/700790-episode-two

 

Thanks all for your feedback and guest suggestions.

If you have iTunes, PLEASE subscribe, rate and review - it really helps push the show up the rankings to make it easier to find. Episode two now live.

A truly fascinating interview (I thought) with Dr Charles Shepherd about his own diagnosis, how ME has become his life's work, the Biobank, the state of research and the politics of it all.

You'll find links to the shows and show notes here: www.meassociation.org.uk/podcast

 

Great episode!

 

Great episode, Gary. Interesting listening to Shepherds own firsthand experiences with the disease in the 70’s. Can only speak for myself, but guess many of us could tell exactly the same story now 40 years later.. Shepherd is really a great capacity knowing the disease and medicine from the inside. Also very uplifting hearing a little more about the bio bank.

 

great show;

one question: Charles mentioned that the MEA are funding Julia Newton (Newcastle) research (not sure which project). Is the the same research as AfME are funding (Julia Newton is their medical adviser) ?
https://www.actionforme.org.uk/reso...s-the-understanding-muscle-dysfunction-study/

or is it a different one?