UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

I think its the Bristol MP who turned up to the backbench committee cant remember her name

 

Assessments for benefits don't take account of fluctuation and after effects of doing things.

 

'Shame on the academic who told Carol M she shouldn't be doing this debate' Good to have that on the record again about Sharpe.

 

good comment now saying shame on the academic 'I cant remember his name' who reprimanded CM

@Trish beat me to it

 

Talking about Helen Hyland of the MEA who is a constituent of his and provided him with information. Her husband took his life a year after he was diagnosed with ME.

 

Importance for patients of validation that it's a genuine medical condition.

 

Constituent was a therapist and had to give up work with severe ME. Left to manage on her own once GP couldn't do any more. GET made her more severe. Telephone appointment with GP occasionally. Good description of what it's like to have severe ME and be isolated.

 

Current speaker is 'an old friend' of Dr Ian Gibson. Government needs to recognise the appalling way sufferers have been treated. Sometimes doctors get things wrong. Example - doctors used to tell people to start smoking as good for their health. Evidence needs to be accurate. PACE is bad science.

 

Now Merryn Crofts' MP.

 

Very powerful speech by Merryn's MP.

Now an MP telling patients' stories. Says the common theme is invisibility.

 

Steven Pound now. ME is the illness with the worst public relations, so much stigma and nonsense.

 

Stephen Pound talking about Children quoting Dowsett now talking about child protection