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UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

Discussion in 'General ME/CFS news' started by Sasha, Jun 6, 2018.

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Page 8 of 22
  1. Trish

    Trish Moderator Staff Member

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    Quoting Dowsett and Colby research 21 years ago showing ME is largest preventer of children going to school. Child protection often brought it. Powerful speech against this.
     
    Trish, Jun 21, 2018
    #141
    MEMarge, MeSci, Woolie and 14 others like this.
  2. Andy

    Andy Committee Member

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    The typical psych sidestep, "oh, well, our 'successful' therapies aren't meant for that illness but something just slightly different".
     
    Andy, Jun 21, 2018
    #142
    anniekim, MEMarge, Woolie and 14 others like this.
  3. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
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    current speaker said Sharpe should apologise
     
    NelliePledge, Jun 21, 2018
    #143
    MeSci, arewenearlythereyet, Woolie and 23 others like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    4,006
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    Guy talking now named Michael Sharpe and called on him to apologise (about his email to Carol).
     
    Sasha, Jun 21, 2018
    #144
    MEMarge, MeSci, Woolie and 24 others like this.
  5. NelliePledge

    NelliePledge Moderator Staff Member

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    no this isnt the house of Lords these people have constituents rather than the old boy network
     
    NelliePledge, Jun 21, 2018
    #145
    Woolie, Barry, ukxmrv and 10 others like this.
  6. Dr Carrot

    Dr Carrot Senior Member (Voting Rights)

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    266
    This wouldn’t really happen til the debate got to the HoC. Westminster Hall debates are basically a way to put a case to a ministerial department. We will see what their response is soon...
     
    Dr Carrot, Jun 21, 2018
    #146
    Woolie, Barry, ladycatlover and 14 others like this.
  7. Keela Too

    Keela Too Senior Member (Voting Rights)

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    All these different speakers, each with a different style, each with a message supporting the patient perspective, is VERY powerful.
     
    Keela Too, Jun 21, 2018
    #147
    MEMarge, MeSci, Barry and 26 others like this.
  8. NelliePledge

    NelliePledge Moderator Staff Member

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    indeed and the cross party support, and the spread across the country as well lots of different accents
     
    NelliePledge, Jun 21, 2018
    #148
    MEMarge, MeSci, arewenearlythereyet and 17 others like this.
  9. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    10,280
    Hoping no one has noticed that won't work for those either......
     
    Invisible Woman, Jun 21, 2018
    #149
    MEMarge, Woolie, Hutan and 7 others like this.
  10. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    4,006
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    Who is the woman talking now?
     
    Sasha, Jun 21, 2018
    #150
  11. Trish

    Trish Moderator Staff Member

    Messages:
    55,414
    Location:
    UK
    Current speaker thanking for the Briefing paper, and Prof Malcolm Hooper for informing her.
     
    Trish, Jun 21, 2018
    #151
    MeSci, Forestvon, Daisymay and 5 others like this.
  12. NelliePledge

    NelliePledge Moderator Staff Member

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    Location:
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    NelliePledge, Jun 21, 2018
    #152
    MeSci, Woolie, Barry and 13 others like this.
  13. Trish

    Trish Moderator Staff Member

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    Location:
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    Research funding £1 per sufferer, mostly from charities. Not enough.
    ME Biobank international reputation, funded by MEA Ramsay Research fund - asking government to contribute.
    Flawed PACE trial. @Jonathan Edwards quoted saying it's an object lesson in how not to conduct a trial.
     
    Trish, Jun 21, 2018
    #153
    MEMarge, MeSci, Woolie and 21 others like this.
  14. NelliePledge

    NelliePledge Moderator Staff Member

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    Sharon Hodgson
     
    NelliePledge, Jun 21, 2018
    #154
    MEMarge, Barry, adambeyoncelowe and 6 others like this.
  15. Trish

    Trish Moderator Staff Member

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    55,414
    Location:
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    Flawed or non existent medical education, delayed diagnosis.
    Asking for a proper care pathway for swift diagnosis and proper care.
    75% of pwme are women - issue of women's pain not take seriously.
     
    Trish, Jun 21, 2018
    #155
    MeSci, Woolie, Barry and 15 others like this.
  16. NelliePledge

    NelliePledge Moderator Staff Member

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    UK West Midlands
    Minister Steve Brine
     
    NelliePledge, Jun 21, 2018
    #156
    Inara, Invisible Woman, Andy and 1 other person like this.
  17. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
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    he has a constituent young person with ME
     
    NelliePledge, Jun 21, 2018
    #157
    MEMarge, Woolie, Inara and 2 others like this.
  18. NelliePledge

    NelliePledge Moderator Staff Member

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    now talking about seeing Unrest
     
    NelliePledge, Jun 21, 2018
    #158
    MeSci, Woolie, Inara and 2 others like this.
  19. Trish

    Trish Moderator Staff Member

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    Seems to understand ME pretty well. Talking about Unrest.
     
    Trish, Jun 21, 2018
    #159
    MEMarge, MeSci, Woolie and 7 others like this.
  20. NelliePledge

    NelliePledge Moderator Staff Member

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    this is substantially different to the 30 minute debate - lets see what he actually comes up with tho
     
    NelliePledge, Jun 21, 2018
    #160
    MEMarge, andypants, adambeyoncelowe and 5 others like this.
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