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UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

Discussion in 'General ME/CFS news' started by Sasha, Jun 6, 2018.

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Page 9 of 22
  1. TiredSam

    TiredSam Committee Member

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    He's been tweeting in the tone of a bully shitting himself since yesterday.
     
    TiredSam, Jun 21, 2018
    #161
    MEMarge, arewenearlythereyet, Woolie and 19 others like this.
  2. Trish

    Trish Moderator Staff Member

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    Now talking about Millions Missing and reading the messages on the shoes.
     
    Trish, Jun 21, 2018
    #162
    MEMarge, Woolie, Barry and 8 others like this.
  3. Sasha

    Sasha Senior Member (Voting Rights)

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    Minister praising Unrest and #MillionsMissing and sticking the boot into the Ricky Gervais sketch. and says he should retract and apologise on Twitter.
     
    Sasha, Jun 21, 2018
    #163
    MEMarge, Barry, EzzieD and 14 others like this.
  4. Trish

    Trish Moderator Staff Member

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    53,399
    Location:
    UK
    Talking about stigma. Partly media representation going back to the 1980's. Now quoting the Ricky Gervais bad joke. Raises the issue about mental health. Physical impact has impact on mental health.
     
    Trish, Jun 21, 2018
    #164
    MEMarge, MeSci, Barry and 10 others like this.
  5. Trish

    Trish Moderator Staff Member

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    53,399
    Location:
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    Research. Government £1.7 billion per year into medical research. MRC welcomes high quality applications blah blah. MRC encourages applications.
    Claims there has been a lack of high quality applications for research funds.
    NIHR has provided over £3 million for ME research - not biomedical. Justifies this as necessary research into treatment - presumably Crawley's junk research ...
     
    Trish, Jun 21, 2018
    #165
    MeSci, Woolie, andypants and 7 others like this.
  6. Trish

    Trish Moderator Staff Member

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    53,399
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    Talking about CMRC now.
     
    Trish, Jun 21, 2018
    #166
    Woolie, Skycloud, Inara and 2 others like this.
  7. Trish

    Trish Moderator Staff Member

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    53,399
    Location:
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    Training. RCGP has online training provision for ME. Funded by NIHR.
    Excusing GP's for not knowing 'everything about everything'.
    GP assessment includes ME.
     
    Trish, Jun 21, 2018
    #167
    MEMarge, Woolie, Chezboo and 6 others like this.
  8. Amw66

    Amw66 Senior Member (Voting Rights)

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    6,515
    I think he must breathe through his ears
     
    Amw66, Jun 21, 2018
    #168
    MEMarge, Barry, ladycatlover and 5 others like this.
  9. Trish

    Trish Moderator Staff Member

    Messages:
    53,399
    Location:
    UK
    Treatment. Need to diagnose first. No accurate diagnostic test. Not easy to diagnose. Should be referred to a specialist service where treatment is based on their needs.
     
    Trish, Jun 21, 2018
    #169
    andypants, Skycloud, adambeyoncelowe and 4 others like this.
  10. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,775
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    just reading off the status quo stuff at the moment
     
    NelliePledge, Jun 21, 2018
    #170
    Daisymay, Dolphin, Skycloud and 5 others like this.
  11. Trish

    Trish Moderator Staff Member

    Messages:
    53,399
    Location:
    UK
    Care act requires local authority care assessment for severe ME and appropriate care provision provided.
     
    Trish, Jun 21, 2018
    #171
    Chezboo, Skycloud, adambeyoncelowe and 2 others like this.
  12. Trish

    Trish Moderator Staff Member

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    Education - legal duty on schools. Guidance blah blah. Should have an individual plan that is flexible etc etc.

    He's just reading out the current provision for everything.
     
    Trish, Jun 21, 2018
    #172
    MEMarge, ladycatlover, Chezboo and 5 others like this.
  13. Andy

    Andy Committee Member

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    Location:
    Hampshire, UK
    Yep, he's just explaining what should happen, not accepting that it often doesn't.
     
    Andy, Jun 21, 2018
    #173
    MEMarge, andypants, ladycatlover and 10 others like this.
  14. Trish

    Trish Moderator Staff Member

    Messages:
    53,399
    Location:
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    NICE guidelines
    CBT/GET - many patients disagree. NICE says patients have choice and right to refuse.
     
    Trish, Jun 21, 2018
    #174
    Woolie, Barry, Skycloud and 4 others like this.
  15. Trish

    Trish Moderator Staff Member

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    NICE is the independent expert body... Politicians should not interfere...
     
    Trish, Jun 21, 2018
    #175
    Woolie, Chezboo, Skycloud and 4 others like this.
  16. Trish

    Trish Moderator Staff Member

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    Carol Monaghan challenging the point about patient choice. No choice if benefits depend on doing GET.
     
    Trish, Jun 21, 2018
    #176
    MEMarge, MeSci, Woolie and 19 others like this.
  17. Trish

    Trish Moderator Staff Member

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    DWP assure him fluctuating conditions are considered. Says he will send copy of debate to DWP.
     
    Trish, Jun 21, 2018
    #177
    MEMarge, MeSci, Woolie and 11 others like this.
  18. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
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    Minister also wants Michael Sharpe to apologise to Carol Monaghan.
     
    Sasha, Jun 21, 2018
    #178
    MEMarge, MeSci, Woolie and 21 others like this.
  19. NelliePledge

    NelliePledge Moderator Staff Member

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    Location:
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    he will write to DWP Minister about benefits assessment
    he will write to RCGP about medical education
    NICE are responsible for guidance so not down to him to interfere but he said NICE will be listening to what is said today
    MRC are talking to CMRC
     
    NelliePledge, Jun 21, 2018
    #179
    MEMarge, MeSci, Woolie and 11 others like this.
  20. Trish

    Trish Moderator Staff Member

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    Location:
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    Concludes by saying today is about 'raising awareness'.
    Echoes comment about Sharpe's e-mail.
     
    Trish, Jun 21, 2018
    #180
    MEMarge, MeSci, Woolie and 13 others like this.
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