United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

The NIHR has just funded £37 million into charities for research purposes but alas there isn't a list of what its actually funded included. I suspect we would have heard from the UK charities if they had received funding from the NIHR. This is the only possibility of ME funding coming from the NIHR I have seen in years of following a feed of all their news.

 


NHS prescribes half a million Copilot licenses for its paperwork headache​

After a trial claimed chatbot saved staff 43 minutes a day, NHS England has decided it's time to supersize the experiment​

 
The NIHR has just funded £37 million into charities for research purposes but alas there isn't a list of what its actually funded included. I suspect we would have heard from the UK charities if they had received funding from the NIHR. This is the only possibility of ME funding coming from the NIHR I have seen in years of following a feed of all their news.

"The scheme, in partnership with the Association of Medical Research Charities (AMRC), will help medical research charities continue to play a vital role in igniting research careers, building research capacity and sustaining the talent pipeline."

So my guess would be that to receive any of the funding you would need to be a member of the AMRC and, to my knowledge, none of the ME/CFS charities are.
 
And we are not allowed to talk politics but I think there may be a clash of views on private finance involvement. I know which side I am on. (Yes, this is relevant to ME/CFS guys.)

And I am looking forward to a new Harry Ramsden's branch opening in Golders Green.
 
Jessica Bavinton is the physiotherapist that co-wrote the PACE Trial GET manuals.

How our team can help you.​

Rehabilitation programmes for people with persistent pain and fatigue.

Have you had to stop doing the things that you used to enjoy? Can you barely think straight? Are you having trouble sustaining work? Are you struggling with persistent pain? Are you debilitated by constant tiredness and fatigue? Do you need some help making changes to improve your current career or job situation?
If you answered yes to any of these…
Then you’re in the right place to get some help!
At Vitality360 we offer personalised, practical and realistic rehabilitation programmes for a range of conditions - you can find information about some of these by clicking the links below.


How persistent pain or fatigue does not mean the end of being able to sustain work…
How persistent pain or fatigue does not mean the end of being able to sustain work…

Having a diagnosis of ME/CFS or Fibromyalgia or Long Covid is not necessarily an end to engaging with activities including working. Here one of our team shares something of her personal experience of sustaining work whilst managing fatigue symptoms aswell as many accounts from past clients who have also been supported, through our specialist programmes, to re-enter work in some capacity.


No answers, all marketing speech:
How do you treat this?

We have been successfully delivering our award-winning rehabilitation packages for over ten years. Living with fatigue or pain is debilitating and it can wreak havoc in any life.

We believe it is possible for anyone to lead a full life, whatever the limitations, and our programmes support you to do this.
Gain control of your health with our flexible rehabilitation programmes.

What happens at the Specialist Assessment?

Our expert clinicians assess your symptoms, lifestyle, and medical history, and collaborate with you to create a personalised rehabilitation programme. We aim to offer a first appointment within 10 working days (subject to clinician availability).

What does an individually tailored Rehabilitation Programme entail?

We can enable you to regain your vitality through one of our tailor-made rehabilitation programmes.
You stay at the heart of the programme.
360-degree treatment approach which draws together the expertise of a wide range of specialisms.
Find your balance between rest and activity.

Learn some practical tools for how to sustain wellbeing.
Be supported to make positive changes to your everyday life to improve your health.
Set achievable vitality targets so you can start doing more of the things you love.
Be supported to get back to work and get the practical help you need.
Be supported to get back to or to stay in education.
Where will I be seen?

Our sessions are conducted via video call. We can also speak by phone if this is more suited to you. If you would like a home visit, we can discuss this option (please note that additional costs are involved).




I’m working in a voluntary capacity, and I'm confident that I have the tools to sustain this long-term and re-enter gainful employment in the near future.

Dan with ME/CFS December 2024

The programme helped to reduce the frequency and severity of energy troughs, which increased my confidence about the future and my ability to return to work.

Simon with ME/CFS October 2024
 
That's horrifying - scarce government funds being spent to give people basic activity planning advice and probably pacing up. 8 hours of therapist advice (that they could get for free from reading a few MEA leaflets) for over £1600, and supposedly getting people back to work.
 
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