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USA: News from #MEAction

Discussion in 'News from organisations' started by ahimsa, Nov 9, 2017.

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Page 4 of 10
  1. Milo

    Milo Senior Member (Voting Rights)

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    2,138
    Unfortunate timing to call for attention on the same day that the media and honestly most of the planet will focus on London for the late Queen's funerals.
     
    Milo, Sep 16, 2022
    #61
    TigerLilea, Fizzlou, Wits_End and 7 others like this.
  2. Wits_End

    Wits_End Senior Member (Voting Rights)

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    1,393
    Location:
    UK London
    It will at least be once the funerals have finished, but still not an ideal time.
     
    Wits_End, Sep 17, 2022
    #62
    TigerLilea likes this.
  3. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    #MEAction & Mayo win Grant for Diagnostic Improvement

    https://www.meaction.net/2022/09/22/mayo-grant/
    Announcement on twitter:
     
    ahimsa, Sep 24, 2022
    #63
    Wilhelmina Jenkins, Dolphin, SNT Gatchaman and 7 others like this.
  4. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    #MEAction’s BOLD Press Strategy Leads to BIG Press Payoff!
    by Adriane Tillman

    https://www.meaction.net/2022/11/03/bold-press-strategy-bold-press-payoff/
     
    ahimsa, Nov 3, 2022
    #64
    Kalliope, Peter Trewhitt, mango and 3 others like this.
  5. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    Excerpt from an email from #MEAction:
    Link to full announcement (name removed):

    https://mailchi.mp/meaction/wad-protest-announcement
     
    ahimsa, Nov 26, 2022
    #65
    Peter Trewhitt, Trish and Ariel like this.
  6. Ariel

    Ariel Senior Member (Voting Rights)

    Messages:
    1,065
    Location:
    UK
    I feel like only something like the ACT UP protests/etc decades ago on AIDS are going to get anyone's attention to solve this mess.
     
    Ariel, Nov 26, 2022
    #66
    MEMarge, ahimsa, BrightCandle and 2 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,922
    Location:
    UK
    Sly Saint, Dec 1, 2022
    #67
    Ariel, ahimsa, Laurie P and 3 others like this.
  8. Laurie P

    Laurie P Senior Member (Voting Rights)

    Messages:
    209
    Location:
    New England, USA
    Last edited by a moderator: Dec 1, 2022
    Laurie P, Dec 1, 2022
    #68
    Ariel, ahimsa and Peter Trewhitt like this.
  9. Laurie P

    Laurie P Senior Member (Voting Rights)

    Messages:
    209
    Location:
    New England, USA
    Last edited by a moderator: Dec 1, 2022
    Laurie P, Dec 1, 2022
    #69
    Ariel, ahimsa, alktipping and 1 other person like this.
  10. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    Excerpt from an email from #MEAction about their Chronic Illness Survey:
    Link to full announcement (name removed):

    https://mailchi.mp/meaction/help-symptom-cluster-characterization-reach-the-finish-line

    EDIT:

    Link to MEAction website page for Chapter 4:

    https://www.meaction.net/epi/
     
    Last edited: Dec 6, 2022
    ahimsa, Dec 5, 2022
    #70
    It's M.E. Linda, Peter Trewhitt, Laurie P and 1 other person like this.
  11. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    [Meant to post this last week ... better late than never!]

    The latest post in the #MEAction series looking at different aspects of ME:

    Facets of ME: Centering ME During the Holidays

    https://www.meaction.net/2022/12/08/facetsofme-centering-me-during-the-holidays/

     
    ahimsa, Dec 17, 2022
    #71
    shak8, RedFox, Kalliope and 3 others like this.
  12. ahimsa

    ahimsa Senior Member (Voting Rights)

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    2,753
    Location:
    Oregon, USA
    ahimsa, Jan 7, 2023
    #72
    Ariel, Trish, RedFox and 1 other person like this.
  13. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,792
    Dolphin, Jan 8, 2023
    #73
    ahimsa, Peter Trewhitt and Trish like this.
  14. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,792
    Dolphin, Jan 9, 2023
    #74
    ahimsa, Lilas, Peter Trewhitt and 1 other person like this.
  15. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    ahimsa, Jan 14, 2023
    #75
    Dolphin, Peter Trewhitt, Trish and 2 others like this.
  16. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,254
    Tom Kindlon, Feb 5, 2023
    #76
    Peter Trewhitt, RedFox and Trish like this.
  17. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    From an #MEAction email:

    "Join #MEAction's Board of Directors!​

    We are excited to share this opportunity to become part of our growing board!

    This is the opportunity to use your leadership and strategy capabilities to support the growth of a grassroots organization fighting for awareness and care for people with ME and Long COVID! If you are curious about board service, want to use your skills to help a growing nonprofit, or know someone who would be a great board member, please let us know and share this message!
    ...

    Applicants from the United States and the United Kingdom are especially encouraged to apply!

    Please upload your resume and letter of interest to this form. The deadline to apply is March 1st , 2023."
    ​
    Full announcement here:

    https://mailchi.mp/meaction/are-you-ready-for-millions-missing-uk-2270121

    EDIT: I have no idea why the link includes a reference to millions missing. Probably used a template from an old email announcement and forgot to change it. I doubled checked and this link does go to the announcement about looking for board members.
     
    ahimsa, Feb 7, 2023
    #77
    RedFox, Trish, Peter Trewhitt and 2 others like this.
  18. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    #MEAction is hiring an "Activist and Volunteer Coordinator."

    This is a paid position and can be done remotely. "You can be located anywhere in the United States; #MEAction is entirely virtual."

    Apply by March 8th 2023.

    Full details here: https://www.meaction.net/openings/
     
    ahimsa, Feb 10, 2023
    #78
    Peter Trewhitt, shak8, RedFox and 1 other person like this.
  19. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,753
    Location:
    Oregon, USA
    #MEAction, in partnership with Patient-Led Research Collaborative, has published a new Clinician’s Pacing Guide.

    From an email announcement:
    Link to Clinician's Pacing Guide:

    https://www.meaction.net/wp-content/uploads/2023/02/Pacing-Guide-Clincians.FINAL2_.pdf

    Full email message here:

    https://mailchi.mp/meaction/nih-comes-up-short-once-again-2270205

    This post has been copied to a new thread in the Resources section:
    Clinicians Pacing Guide, 2023, #MEAction and the Patient-Led Research Collaborative
     
    Last edited by a moderator: Mar 9, 2023
    ahimsa, Feb 26, 2023
    #79
    Kalliope, Wilhelmina Jenkins, RedFox and 2 others like this.
  20. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,792
    Dolphin, Mar 4, 2023
    #80
    RedFox, Trish and Peter Trewhitt like this.
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