USA: News from Solve ME

The Discovery of Target Antigens for Dysfunctional T Cells in ME/CFS and Long COVID
Is there a paper or something written specifically about this hypothesis presented here?
 
New Catalyst Award Funding From Solve M.E. Advances Innovative ME/CFS and Long Covid Studies Toward Treatments

"May 12, 2026
In recognition of World ME Day, Solve M.E. announced today new funding for two award-winning research studies aimed at accelerating progress toward diagnostics and treatments for ME/CFS and Long Covid."

“A Safe, Accessible Treatment for ME/CFS? The Mitochondrial Stabilizer IVO-21 Study” with Dr. Jay H. Chung
Tuesday, September 8, 2026
3:00-4:00 pm PT / 6:00-7:00 pm ET
Register here.

“Sequence ME & Long Covid: The Search for ME/CFS and Long Covid Biomarkers and Subtypes” with the Decode ME Management Team
Wednesday, June 10, 2026
11:00 am-12:00 pm PT / 2:00 pm-3:00 pm ET
Register here.

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Edit: Post on the SequenceME thread for discussion specific to that study: https://www.s4me.info/threads/seque...edinburgh-and-action-for-me.41663/post-692572
 
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Found out about this LA Weekly article from a Bluesky post by Solve ME
Solve M.E. said:
Check out the LA Weekly feature on Solve CEO Emily Taylor. The piece highlights how caregiving for her mother informs Emily's commitment to accelerating research breakthroughs and the creation of our ME/CFS Catalyst Awards Program.
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"How Emily Taylor Shaped Solve M.E.’s Catalyst Awards to Accelerate Breakthrough Research in ME/CFS and Long COVID"
 
Solve ME has two reports on Advocacy Week. I've included some quotes below but there's a lot more detail in the reports so please read the articles on their website for the full picture.

You Reached Out and Your Senators Showed Up for ME/CFS
Earlier this appropriations season, we put out a call to action asking you to contact your Senators in support of ME/CFS research funding, and so many of you responded.

We’ve had 918 community members reach out to their members of Congress, with 2,516 individual outreaches to Senators and Representatives. I know that it can feel like a small thing sometimes: Send an email, make a call, fill out a form. But it’s how we make sure that our community gets heard in the Hall of Congress.

When we have champions like Sen. Markey fighting for us inside Congress, when we line things up through the official processes those offices use, and when we ask you to contact your Senators about something that is genuinely easy for them to say yes to? That combination is powerful. Your calls and emails are the signal that tells other Senators this issue matters to their constituents. And it works. We get results.
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Advocacy Week 2026: What We Did, What Comes Next, and How We Win
In coordination with #MEAction, with input from the Open Medicine Foundation and Bateman Horne, we ran three tracks simultaneously this year: outreach to patient safety & regulatory agencies; state medical board and chief medical officer outreach; and federal appropriations budget advocacy.

Here’s what we accomplished across all three:

- 497 people signed up to participate in Advocacy Week

- 118 letters were sent to Patient Safety and Regulatory Agencies across 30 states and reported back to us, formally documenting the links between a lack of medical education about ME/CFS and patient safety and healthcare quality issues.

- 561 people signed onto our community letters to both individual State Medical Boards and the national Federations of State Medical Boards. The forms are now closed, and we emailed the letters and sent physical copies in the mail.

- 42 medical professionals signed onto our Chief Medical Officer outreach letters

- 918 community members took federal action, with 2,516 individuals reaching out to Senators and Representatives during a critical federal funding window.

Our asks this year were:

- To keep ME/CFS as an eligible topic area in the Congressionally Directed Medical Research Project (CDMRP)

- To provide at least $50 million in funding for the implementation of the NIH ME/CFS Research Roadmap

- To increase funding for the CDC’s ME/CFS program to $15.4 million.
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