USA: News from the Bateman Horne Center

ahimsa · May 3, 2025

Online Support Group from Bateman Horne Center

Topic: Love Relationships and Illness

Tuesday, May 20, 1:00 pm - 2:15 pm MDT
8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ships+and+Illness&iso=20250520T13&p1=220&ah=1

Advance registration required - Registration link

forestglip · May 9, 2025 at 8:43 PM

A Roadmap to Better Care: Clinical Care Guide for ME/CFS, Long COVID & Infection-Associated Chronic Conditions

Too often, people living with ME/CFS, Long COVID, and infection-associated chronic conditions (IACCs) spend years searching for answers—only to be met with dismissal, outdated advice, or clinicians unsure how to help. The Bateman Horne Center (BHC) is working to change that.

We’re proud to announce the release of our Clinical Care Guide for Managing ME/CFS, Long COVID, and IACCs—a robust resource that translates clinical expertise and lived experience into a step-by-step framework for assessment, diagnosis, and ongoing care.

A Tool for Patients and Providers
This guide isn’t just for healthcare professionals—it’s for anyone navigating these complex, often disabling conditions. Whether you’re a patient, caregiver, or advocate, the guide offers language, tools, and validation to bring to your next medical appointment. It’s designed to bridge the gap between lived experience and clinical understanding.

If you’ve ever heard “your labs are normal,” or felt pressured to “just push through,” this resource may help change the conversation.

And if you’re a provider unsure how to support patients with post-viral illness, this guide offers a clear, evidence-informed roadmap—grounded in science, centered on function, and shaped by real-world care.

What the Guide Covers
Developed by Bateman Horne Center clinicians and partners with deep experience in ME/CFS and Long COVID, the guide provides:

Diagnostic criteria for ME/CFS, with guidance for recognizing overlaps with Long COVID and other IACCs

Practical clinical tools like the Good Day/Bad Day Questionnaire and NASA Lean Test for assessing impairment and orthostatic intolerance

Management strategies for post-exertional malaise (PEM), cognitive dysfunction, sleep disruption, pain, and more

Guidance for disability documentation and school/workplace accommodations

Special sections for pediatric and severely affected patients, as well as allied professionals (physical therapy, occupational therapy and speech language pathology)

Each chapter is written with clarity and empathy, providing both clinical rigor and real-life relevance.
Click to expand...

Info page

PDF of Clinical Care Guide

Utsikt · May 9, 2025 at 9:14 PM

forestglip said: ↑

A Roadmap to Better Care: Clinical Care Guide for ME/CFS, Long COVID & Infection-Associated Chronic Conditions

Info page

PDF of Clinical Care Guide
Click to expand...

Based on searches and titles:
Goes beyond the evidence in many recommendations, talk about hEDS, MCAS, CCI, etc., although with some caveats.

Not sure I would give it to my GP. Although it might have some good sections if you go looking.

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